posted
I know if I could get my brain to work I could research this more fully on my own, but oh my goodness the brain fog has me down.
I feel like I am not improving very much so I wanted to run my meds by some of you who are more experienced to see if I may need to ask my LLMD about adding something else.
I have a follow up with him in a couple of weeks and never feel like I am very prepared to ask good questions.
I am doing IV Rocephin 4 days on 3 days off (I am on my 7th week) Previously had been on Doxy or Mino at various doses.
Flagyl on the 3 days off of Rocephin
Rifampin twice a day 7 days a week
I have a positive Lyme test through Igenex and a clinical dx of bartonella. Diagnosed officially in 9/10, but symptoms for at least 3 years.
It seems as though I may not be attacking the "L" form? But I am not sure what the Rifampin does outside of possibly treating Bart?
I realize Flagyl is supposed to be a cyst buster and Rocephin just kills the spirochetes so that is why I wonder is something is missing. Not sure which abx would be a good addition?
Of course I am also on a number of supplemental type things like probiotic, magnesium, ALA, B12, Fish Oil, LDN. That's all I can remember but I know there are many more bottles in that cabinet.
One thing I wanted to mention is that I had been noticing some improvement in my energy levels and pain levels but I had to miss last week of my IV meds due to a port malfunction while out of town.
I didn't feel bad while off the meds that week, but when I restarted this week I have felt miserable. I didn't think it was a herx b/c I never had a herx when I first started on the IV.
I did get a note from my doc that my WBC is low, but I guess not quite low enough to stop the meds yet? Maybe that is why I feel so poorly this week?
I know there are a lot of question in this one post, but if anyone has any suggestions on any piece of it I would be so grateful.
Thank you all...
Posts: 47 | From Texas | Registered: Oct 2010
| IP: Logged |
posted
I've not been tested and do not seem to have many of the clinical symptoms when looking at the chart.
Posts: 47 | From Texas | Registered: Oct 2010
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
It's my understanding that L Forms are Intracellular forms of the bacteria. In which case you would need to be taking a macrolide abx such as Azithromycin, Biaxin, etc..
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic