I recently had bloodwork done through Labcorp. I don't have the results in front of me. But my doctor told me that the results indicated I was genetically susceptible to chronic Lyme and mold.
Does this mean I don't detox well? Actually I have no idea what this means.
Anyone??
Posted by 5vforest (Member # 29365) on :
Genetically susceptible? Sounds real odd... real, real odd. Get a copy of the lab report and let us know what it says.
Posted by sutherngrl (Member # 16270) on :
I think its the same thing as...... some ppl are more likely to get cancer than others, or some ppl are more likely to get heart disease than others, or diabetes, etc.
For example I know ppl that are bitten by ticks a lot and have never gotten LD. Some of us are just more prone to or genectically susceptible to getting it.
Not sure how they can tell that through labwork though.
Posted by annier1071 (Member # 28977) on :
suthern
I was told the same by my llmd. My hubby was bitten over 100 times as a hunter in the same area of Dutchess county as I was. He, and all his friends and their tick bites never had an issue with lyme.
I was bitten twice on a ridign lawn mower (not even in the woods like they were) and I have chronic lyme that is taking my life away fast. The llmd said some have lower immune systems and get lyme while others bodies can fight it off on their own.
Posted by Lymeorsomething (Member # 16359) on :
It's a good idea to get CC'd on all blood work. Please let us know what test he is referring to when you find out...
Posted by Runner17 (Member # 30272) on :
I had the HLA DRB DQB tests done. I'm looking at the results and I have no idea what they mean or how I would type them in here. Anyone have these tests done?
Posted by tick battler (Member # 21113) on :
This is a real test used by top LLMD's. Dr. J in CT tested my children.
I don't know the details about it but I think I recall the problematic ones are HLA-DR-4 and HLA DR-2. My family has these numbers and many do who have chronic lyme. I believe it means you don't detox certain things well (lyme bacteria and mold, but I have not researched this thoroughly enough to tell you more than that.
tickbattler
Posted by Runner17 (Member # 30272) on :
I had the HLA DRB DQB tests done. I'm looking at the results and I have no idea what they mean or how I would type them in here. Anyone have these tests done?
Posted by momlyme (Member # 27775) on :
Did you have it done through LabCorp?
You should have results in these (some may be blank, that's correct.)
Either post the results here or PM me. I will use the "rosetta stone" in Surviving to decode it for you.
Posted by AnnaOD20 (Member # 29942) on :
I find this very interesting as well. My brother has had many tick bites and has had the bulls eye rash and has never developed symptoms.
Although I was diagnosed in Dec 2010 I was pretty much symptom free by the time of my diagnosis. I went on meds and have been on them for over 3 months, but often wonder if I would have been OK w/out treatment or if it would have come up at some other point in life.
I think that the treatment has messed w/ my overall functioning (i.e. esp candida overgrowth) but besides fatigue from time to time I don't have a lot of other symptoms. So interesting!
Posted by UnexpectedIlls (Member # 15144) on :
I just had this too and my doc messed it up as the genes she said i have do not exist. I had to email a few people to help me with it... I will post mine here too if anyone else has a interpretation....
DRB1*01:01
DRB1*03:JRFR
DQB1*02:SS
DQB1*05:DFT
DRB3*02:FVGA
DRB3*-
DRB4*- DRB4*- DRB5*- DRB5*-
confusing!
Posted by momlyme (Member # 27775) on :
I believe your HLA DR Haplotypes are: 1-5 17-2-52B
This is only my second one I have decoded... so, please if anyone disagrees or has anything to add... I would love to have a discussion or be corrected!
Posted by lymewarrior11 (Member # 31367) on :
this is so interesting. i've always wondered about this...as like others here mentioned, so many people in my area, playing in the woods, etc, never got lymed...or if they did...no big deal. me on the other hand have had it since 94. yes, been treated by LLMDs for several yrs...still symptomatic. chronic lyme forever........ holding on, managing symptoms
Posted by lyme in Putnam (Member # 11561) on :
My sister is chronic in constant neuropathy after 1200 vials of zithro, rocephin, claforin...orals, I was on iv 6 years on and off, my son was or orals for 3 years, my other sister swears her "fibromyalgia" is acting up and knows her body and knows when its lyme or fibromyalgia. My neices has had it...Genetics???? Something in my family can't rid it or my other sister justs asks for it to be dormant for pain to subside. Cant help but wonder if its from all the iv that caused the neuropathy. Genetics in my fam. Sherwood Island weekly family picnics, Catskills house when we were kids, recent married pulling weeds and mowing lawns, God knows how many times when we didn't know about lyme we had ticks embedded.
Posted by lymewarrior11 (Member # 31367) on :
me too, since 03. and the family who doesn't have it doesn't understand. it's a lonely road.
Posted by hopeful4 (Member # 8486) on :
I'm not familiar with the tests you mention. I'll have to read up on them. Sounds important.
However, my new, wholistic PCP tested my for the MTHFR genetic mutation, and I tested positive for one aspect of the mutation. This mutation messes up the methylation cycle, which, for one thing, causes a decrease in the production of glutathione.
Glutathione is important for keeping the immune system functioning properly. If we don't have enough glutathione we can become more succeptable (sp?) to lyme and other diseases.
Just adding my 2 cents.
Best wishes.
Posted by scorpiogirl (Member # 31907) on :
Hi,
My LLMD just reviewed my results and said I have the "dreaded genotypes" 4-3-53. My HLA DRB DQB tests were done at LapCorp.
I still can't wrap my heard around this but I remember her saying that people w/ this genotype has a harder time fighting Lyme.