posted
I recently had bloodwork done through Labcorp. I don't have the results in front of me. But my doctor told me that the results indicated I was genetically susceptible to chronic Lyme and mold.
Does this mean I don't detox well? Actually I have no idea what this means.
Anyone??
Posts: 132 | From Somewhere | Registered: Jan 2011
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posted
Genetically susceptible? Sounds real odd... real, real odd. Get a copy of the lab report and let us know what it says.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I think its the same thing as...... some ppl are more likely to get cancer than others, or some ppl are more likely to get heart disease than others, or diabetes, etc.
For example I know ppl that are bitten by ticks a lot and have never gotten LD. Some of us are just more prone to or genectically susceptible to getting it.
Not sure how they can tell that through labwork though.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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I was told the same by my llmd. My hubby was bitten over 100 times as a hunter in the same area of Dutchess county as I was. He, and all his friends and their tick bites never had an issue with lyme.
I was bitten twice on a ridign lawn mower (not even in the woods like they were) and I have chronic lyme that is taking my life away fast. The llmd said some have lower immune systems and get lyme while others bodies can fight it off on their own.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
It's a good idea to get CC'd on all blood work. Please let us know what test he is referring to when you find out...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
I had the HLA DRB DQB tests done. I'm looking at the results and I have no idea what they mean or how I would type them in here. Anyone have these tests done?
Posts: 132 | From Somewhere | Registered: Jan 2011
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
This is a real test used by top LLMD's. Dr. J in CT tested my children.
I don't know the details about it but I think I recall the problematic ones are HLA-DR-4 and HLA DR-2. My family has these numbers and many do who have chronic lyme. I believe it means you don't detox certain things well (lyme bacteria and mold, but I have not researched this thoroughly enough to tell you more than that.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
I had the HLA DRB DQB tests done. I'm looking at the results and I have no idea what they mean or how I would type them in here. Anyone have these tests done?
Posts: 132 | From Somewhere | Registered: Jan 2011
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Did you have it done through LabCorp?
You should have results in these (some may be blank, that's correct.)
Either post the results here or PM me. I will use the "rosetta stone" in Surviving to decode it for you.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
I find this very interesting as well. My brother has had many tick bites and has had the bulls eye rash and has never developed symptoms.
Although I was diagnosed in Dec 2010 I was pretty much symptom free by the time of my diagnosis. I went on meds and have been on them for over 3 months, but often wonder if I would have been OK w/out treatment or if it would have come up at some other point in life.
I think that the treatment has messed w/ my overall functioning (i.e. esp candida overgrowth) but besides fatigue from time to time I don't have a lot of other symptoms. So interesting!
Posts: 376 | From New York | Registered: Jan 2011
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posted
I just had this too and my doc messed it up as the genes she said i have do not exist. I had to email a few people to help me with it... I will post mine here too if anyone else has a interpretation....
DRB1*01:01
DRB1*03:JRFR
DQB1*02:SS
DQB1*05:DFT
DRB3*02:FVGA
DRB3*-
DRB4*- DRB4*- DRB5*- DRB5*-
confusing!
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
I believe your HLA DR Haplotypes are: 1-5 17-2-52B
This is only my second one I have decoded... so, please if anyone disagrees or has anything to add... I would love to have a discussion or be corrected!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
this is so interesting. i've always wondered about this...as like others here mentioned, so many people in my area, playing in the woods, etc, never got lymed...or if they did...no big deal. me on the other hand have had it since 94. yes, been treated by LLMDs for several yrs...still symptomatic. chronic lyme forever........ holding on, managing symptoms
Posts: 11 | From NYC | Registered: Apr 2011
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
My sister is chronic in constant neuropathy after 1200 vials of zithro, rocephin, claforin...orals, I was on iv 6 years on and off, my son was or orals for 3 years, my other sister swears her "fibromyalgia" is acting up and knows her body and knows when its lyme or fibromyalgia. My neices has had it...Genetics???? Something in my family can't rid it or my other sister justs asks for it to be dormant for pain to subside. Cant help but wonder if its from all the iv that caused the neuropathy. Genetics in my fam. Sherwood Island weekly family picnics, Catskills house when we were kids, recent married pulling weeds and mowing lawns, God knows how many times when we didn't know about lyme we had ticks embedded.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
me too, since 03. and the family who doesn't have it doesn't understand. it's a lonely road.
Posts: 11 | From NYC | Registered: Apr 2011
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posted
I'm not familiar with the tests you mention. I'll have to read up on them. Sounds important.
However, my new, wholistic PCP tested my for the MTHFR genetic mutation, and I tested positive for one aspect of the mutation. This mutation messes up the methylation cycle, which, for one thing, causes a decrease in the production of glutathione.
Glutathione is important for keeping the immune system functioning properly. If we don't have enough glutathione we can become more succeptable (sp?) to lyme and other diseases.
Just adding my 2 cents.
Best wishes.
Posts: 873 | From WA | Registered: Dec 2005
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Hi,
My LLMD just reviewed my results and said I have the "dreaded genotypes" 4-3-53. My HLA DRB DQB tests were done at LapCorp.
I still can't wrap my heard around this but I remember her saying that people w/ this genotype has a harder time fighting Lyme.
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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