i have read somewhere, forget where (sorry) that IV antibiotics are the only think that will treat the Lyme you have if you have had it for years, and that oral antibiotics will not treat it at this point, but maybe after you take IV for awhile. can anyone say that theyve seen this to be true?
Posted by Tincup (Member # 5829) on :
It is all individual. No one protocol fits all I'm afraid.
Some docs don't want patients on IV's if they have been sick fro years till the spirochetal load has been reduced some. They may start with orals, then IV, then back to orals.
Some feel orals alone will do it. Others use IV from the start and follow with orals.
Wish I could give you a straight answer, but it is how it is.
Hope you get the right one for you, which may take some experimenting.
Good luck!
Posted by triathletelymie (Member # 26456) on :
I have been on numerous orals and two different IV meds...rocephin and doxy...am still very ill...so, no, IV is not the "magic bullet" for everyone! I certainly wish that something was!
~tri
Posted by Lymetoo (Member # 743) on :
Not necessarily. I had it for 42 years before beginning treatment. It took 4 yrs of orals to get me well.
Posted by Haley (Member # 22008) on :
Wow Lymetoo. You had it for 42 years?! Ok that's one testimony I'll keep in my back pocket. It's encouraging that you got well.
I started with IV and am now alternating between oral and IV. I do think the IV is more effective and easier on your system but it still takes a long time to treat.
Like Tri said... no magic bullet.
Posted by Lymetoo (Member # 743) on :
I'm now up to 52 yrs of having it. Was diagnosed and treated 11 yrs ago. (Aug 2000)
YOU CAN GET WELL! Posted by katrinab (Member # 30330) on :
wow lymetoo thats a long time to be sick! i guess it is very individual since there are so many factors
Posted by Hambone (Member # 29535) on :
Lymetoo...is your story written anywhere?
Curious as to what kind of arsenal you used to get well.
It's encouraging to know that some of us who've had this a long time aren't necessarily screwed.
Posted by katrinab (Member # 30330) on :
yea lymetoo i am curious too. im also curious if you tested CDC positive.
Posted by Beagle (Member # 29698) on :
Lymetoo...me too. Would love to hear your story.
Posted by Laura_W (Member # 31491) on :
Me three! I'm looking at probably twenty years of having it.
Would love to hear the story, as well as what you tested positive for if you are willing
Posted by Lymetoo (Member # 743) on :
I'll send PM's. My story does not include the meds used. I took just about everything.
I was not CDC positive. I believe it is because I had been ill for so long and my body could not register a good antibody response. I also had been given several months of steroids about 6 yrs before being tested. That may have skewed results also.
Laura, I was positive for Babesia and had several lyme specific bands.
Posted by micpal (Member # 19862) on :
Wow, some inspiration here. I just posted a note about looking for a good lab for testing because after 12 + years, I think I am ready to fight again. Could I really be lyme free?
Posted by BackinStOlaf (Member # 23725) on :
Lymetoo: Would you mind PMing me your story as well?
I need some hope.
thanks
Posted by Igor's mom (Member # 29191) on :
Lymetoo, If it's not too late I too would love to hear your odyssey it's inspirational to those of us just starting out.
Posted by beths (Member # 18864) on :
I would like a pm too-I'm really down today
Posted by Nicole2011 (Member # 30672) on :
I actually felt a bigg difference with IV, im currently on it now & i just feel more energized & 70% like myself.. Way better then before.. Although i only have 30 days on it & today is my 14th day on it.. I know im going to have to fuollow up with orals but IV deff gave it a good head start fo me Posted by Dawn in VA (Member # 9693) on :
I don't think IV ABX are the ONLY way, but perhaps might jump start the process for some (I feel like it did for me; I was undiagnosed for 7 years), or if you've hit a plateau on orals. I am a strong proponent of combination ABS Tx either way, orals or IVs. Other big players of course are all of the bacterial, viral, and perhaps parasitic co-illnesses involved.
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