posted
i have read somewhere, forget where (sorry) that IV antibiotics are the only think that will treat the Lyme you have if you have had it for years, and that oral antibiotics will not treat it at this point, but maybe after you take IV for awhile. can anyone say that theyve seen this to be true?
Posts: 723 | From boston,ma | Registered: Jan 2011
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
It is all individual. No one protocol fits all I'm afraid.
Some docs don't want patients on IV's if they have been sick fro years till the spirochetal load has been reduced some. They may start with orals, then IV, then back to orals.
Some feel orals alone will do it. Others use IV from the start and follow with orals.
Wish I could give you a straight answer, but it is how it is.
Hope you get the right one for you, which may take some experimenting.
posted
I have been on numerous orals and two different IV meds...rocephin and doxy...am still very ill...so, no, IV is not the "magic bullet" for everyone! I certainly wish that something was!
~tri
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
Not necessarily. I had it for 42 years before beginning treatment. It took 4 yrs of orals to get me well.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Wow Lymetoo. You had it for 42 years?! Ok that's one testimony I'll keep in my back pocket. It's encouraging that you got well.
I started with IV and am now alternating between oral and IV. I do think the IV is more effective and easier on your system but it still takes a long time to treat.
Like Tri said... no magic bullet.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
wow lymetoo thats a long time to be sick! i guess it is very individual since there are so many factors
Posts: 723 | From boston,ma | Registered: Jan 2011
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Lymetoo...is your story written anywhere?
Curious as to what kind of arsenal you used to get well.
It's encouraging to know that some of us who've had this a long time aren't necessarily screwed.
posted
Me three! I'm looking at probably twenty years of having it.
Would love to hear the story, as well as what you tested positive for if you are willing
-------------------- 10/10 EIA 1.4+, 41 (IGG), 23 (IGM) Bitten over 20 years ago. Currently not treating, looking for a Dr who will work with my insurance lol.
More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision. Posts: 323 | From Michigan | Registered: Apr 2011
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posted
I'll send PM's. My story does not include the meds used. I took just about everything.
I was not CDC positive. I believe it is because I had been ill for so long and my body could not register a good antibody response. I also had been given several months of steroids about 6 yrs before being tested. That may have skewed results also.
Laura, I was positive for Babesia and had several lyme specific bands.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Wow, some inspiration here. I just posted a note about looking for a good lab for testing because after 12 + years, I think I am ready to fight again. Could I really be lyme free?
Posts: 20 | From Minnesota | Registered: Apr 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Lymetoo: Would you mind PMing me your story as well?
I need some hope.
thanks
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
I actually felt a bigg difference with IV, im currently on it now & i just feel more energized & 70% like myself.. Way better then before.. Although i only have 30 days on it & today is my 14th day on it.. I know im going to have to fuollow up with orals but IV deff gave it a good head start fo me
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I don't think IV ABX are the ONLY way, but perhaps might jump start the process for some (I feel like it did for me; I was undiagnosed for 7 years), or if you've hit a plateau on orals. I am a strong proponent of combination ABS Tx either way, orals or IVs. Other big players of course are all of the bacterial, viral, and perhaps parasitic co-illnesses involved.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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