LymeNet Flash: Anyone on Byron White for maintenance?

This is topic Anyone on Byron White for maintenance? in forum Medical Questions at LymeNet Flash.

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Posted by unsure445 (Member # 15962) on :

Is anyone on Byron White for maintenance?

I used to take Cowden and was told I would eventually take it for maintenance for several years at least. Possibly more.

Now I take Byron white, no more Cowden and I am wondering if the same theory applies.

Just curious.....

Posted by seekhelp (Member # 15067) on :

No one can know. These are so new.

Posted by TS96 (Member # 14048) on :

I'm going on my 6th month of maintenance with BW.

Like you I did almost a year of cowden in 2009 and ended up going back on abx and iv.

After 3 mo. of rocephin and insurance denials I felt good enough to get on the BW. I haven't lost ground but I haven't gained any either.

I still have GI and cognitive issues but I was more than ready to get away from abx and I had little pain and the fatigue is gone.

I don't see myself continuing the BW too much longer. I will taper down till it's gone and see how I do.