LymeNet Flash: Anyone on Byron White for maintenance?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Anyone on Byron White for maintenance?

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Topic: Anyone on Byron White for maintenance?

unsure445
LymeNet Contributor
Member # 15962

posted

Is anyone on Byron White for maintenance?

I used to take Cowden and was told I would eventually take it for maintenance for several years at least. Possibly more.

Now I take Byron white, no more Cowden and I am wondering if the same theory applies.

Just curious.....

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unsure445

Posts: 824 | From northeast | Registered: Jun 2008 | IP: Logged |

seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

posted

No one can know. These are so new.

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008 | IP: Logged |

TS96
LymeNet Contributor
Member # 14048

posted

I'm going on my 6th month of maintenance with BW.

Like you I did almost a year of cowden in 2009 and ended up going back on abx and iv.

After 3 mo. of rocephin and insurance denials I felt good enough to get on the BW. I haven't lost ground but I haven't gained any either.

I still have GI and cognitive issues but I was more than ready to get away from abx and I had little pain and the fatigue is gone.

I don't see myself continuing the BW too much longer. I will taper down till it's gone and see how I do.

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Bart Henslea 1976
Fibro/CFS/arthritis 2004
Lyme diagnosed 2007
3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good.

Posts: 647 | From NY | Registered: Dec 2007 | IP: Logged |

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