Thanks for your input.
Posted by CherylSue (Member # 13077) on :
up
Posted by CherylSue (Member # 13077) on :
anybody?
Posted by seekhelp (Member # 15067) on :
Myco doesn't seem popular on this forum. Posted by sammy (Member # 13952) on :
I've tested positive for mycoplasma. Didn't respond to your post earlier because I'm not better yet. Maybe others here are in the same situation.
From what I understand mycoplasma is treated with similar antibiotic combinations used for Lyme or Bartonella or CPN. Doxy (or Mino) + Zith (or Biaxin). Some strains also respond well to quinolones like Levaquin.
I've been told that chronic mycoplasma needs to be treated continuously for 1-2yrs. So stick with your treatment plan, don't give up too soon.
Posted by momintexas (Member # 23391) on :
Mycoplasma is very slow growing and very hard to get rid of.
I have been following Dr Garth Nicolson for awhile now and reading everything I can that he has written.
He talks about the need to treat for a minimum of 6 six week cycles. Relapse rate is high.
We are still fighting the battle against it. Progress is being made but it's soooooo very slow.
It comes with lots of ups and downs. Sorry I can't answer your question. All I can tell you is, treatment is working for us, but it's taking a long time. I do see the light at the end of the tunnel, but I suspect we have at least 6 more months to go. And I know I've mentioned this before, but I really don't think a lot of Dr's take it seriously enough.
Hang in there. Posted by CherylSue (Member # 13077) on :
No, my first LLMD wasn't concerned. My second LLMD is very concerned.
Sammy & Mom,
What meds and dosages were you on? I'm starting with low dose azithromycin and slowly ramping up due to the herxing.
Thanks for your input.
Posted by CherylSue (Member # 13077) on :
up
Posted by WhitneyS (Member # 25666) on :
I dont know how much is really known about it. Dr Nicolson is the only dr who has really studied it, but the thing is he uses abx for long periods of time to treat it. I am confused because from everything Ive read Myco is not a bacteria...so whats up with the abx.
I know i at least have myco p., I dont think treatment is all that different from Lyme, so Im not really doing anything differently.
Posted by Lymetoo (Member # 743) on :
I think most LLMD's feel the Lyme meds will kill it out.
Posted by CherylSue (Member # 13077) on :
Not all LYme abx hit Myco. Just a few that are listed above. If you are not on them, you are not treating it.
Posted by baileypup (Member # 22824) on :
There's a lot of discussion of mycoplasma on the www.roadback.com website. It's believed that it contributes and/is the cause of most autoimmune disease.
The meds used are primarily minocycline. Second is doxycycline. IV Clindamycin is also used in conjunction with minocycline.
Posted by sbh93 (Member # 30429) on :
I'm not coughing up stuff from my lungs anymore, but doubt the myco is gone as I have only been treating a few months. My ears are still blocked (a straight year now) and some other symptoms I attribute to myco are hanging on. I'm on abx and a variety of herbal meds and other supplements.
Posted by CherylSue (Member # 13077) on :
SBH, What are the herbal supplements you take for it?
Thanks.
Bailbeypup,
I didn't see much on that site you mentioned. It's hard to navigate. Do you have a shortcut to the discussion part?
Thanks.
Posted by bridge (Member # 30896) on :
Like the rest of you, I have also tested positive for mycoplasma pneumoniae.
I'm seeing 2 more doctors this month, but the doctor I have been seeing didn't place too much emphasis on it. To him, it was just another piece of evidence that lyme is in my body, but not necessarily something to be treated individually.
I'm wondering if by positive, do you all mean on the IGG or IGM. Mine is only positive for the IGG so I'm questioning if that makes a difference!?
Thanks!
Posted by CherylSue (Member # 13077) on :
Mine is on the IGG. According to Dr. Garth Nicholson, " Since M. pneumoniae is an intracellular infection, meaning that it hides inside cells where it cannot stimulate much of an immune response, when an immune response is detected, especially in high titers, it usually means that the infection is active and some microorganism is being released from cells."
When my IgG was a little lower (1.61) I felt better although not completely well. Now it's 2.21 and I am a sick puppy. The change happened in four months.
Dr. B. believes that if you are treated for Lyme and coinfections, but still unwell, look for the myco. He calls it the "chronic fatigue germ."
Myco has very similar symptoms to Lyme. My LLMD checked my CD57 and it was 125. My ferritin was 62. It's not the Lyme or Babesia. It's the Myco P. making me verry sick.
Check out immed.org Garth Nicolson's site. If you email him he will send a download of info.
I don't have the pulmonary symptoms of myco P. Just the neruological and neuropathy and chronic fatigue.
If you are treating Lyme with doxy/zith you have it covered. If you doc prescribes cipro/levaquin you are covered.
Myco P. is a bacteria with some viral properties. Sometimes antivirals are prescribed as well.
Lauricidin, a supplement, may be helpful as an adjunct, but not as a sole treatment. Olive Leaf is used, too.
Posted by baileypup (Member # 22824) on :
![[Frown]](frown.gif)
![[group hug]](graemlins/grouphug.gif)