CherylSue
Frequent Contributor (1K+ posts)
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posted
What did you take? Abx? Alternative? Dosages?
Thanks for your input.
Posts: 1954 | From Illinois | Registered: Aug 2007
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
up
Posts: 1954 | From Illinois | Registered: Aug 2007
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
anybody?
Posts: 1954 | From Illinois | Registered: Aug 2007
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seekhelp
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Member # 15067
posted
Myco doesn't seem popular on this forum. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I've tested positive for mycoplasma. Didn't respond to your post earlier because I'm not better yet. Maybe others here are in the same situation.
From what I understand mycoplasma is treated with similar antibiotic combinations used for Lyme or Bartonella or CPN. Doxy (or Mino) + Zith (or Biaxin). Some strains also respond well to quinolones like Levaquin.
I've been told that chronic mycoplasma needs to be treated continuously for 1-2yrs. So stick with your treatment plan, don't give up too soon.
Posts: 5237 | From here | Registered: Nov 2007
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momintexas
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Member # 23391
posted
Mycoplasma is very slow growing and very hard to get rid of.
I have been following Dr Garth Nicolson for awhile now and reading everything I can that he has written.
He talks about the need to treat for a minimum of 6 six week cycles. Relapse rate is high.
We are still fighting the battle against it. Progress is being made but it's soooooo very slow.
It comes with lots of ups and downs. Sorry I can't answer your question. All I can tell you is, treatment is working for us, but it's taking a long time. I do see the light at the end of the tunnel, but I suspect we have at least 6 more months to go. And I know I've mentioned this before, but I really don't think a lot of Dr's take it seriously enough.
Hang in there. Posts: 1408 | From Tx | Registered: Nov 2009
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CherylSue
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Member # 13077
posted
No, my first LLMD wasn't concerned. My second LLMD is very concerned.
Sammy & Mom,
What meds and dosages were you on? I'm starting with low dose azithromycin and slowly ramping up due to the herxing.
Thanks for your input.
Posts: 1954 | From Illinois | Registered: Aug 2007
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CherylSue
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Member # 13077
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up
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
I dont know how much is really known about it. Dr Nicolson is the only dr who has really studied it, but the thing is he uses abx for long periods of time to treat it. I am confused because from everything Ive read Myco is not a bacteria...so whats up with the abx.
I know i at least have myco p., I dont think treatment is all that different from Lyme, so Im not really doing anything differently.
Posts: 844 | From CA | Registered: Apr 2010
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posted
I think most LLMD's feel the Lyme meds will kill it out.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Not all LYme abx hit Myco. Just a few that are listed above. If you are not on them, you are not treating it.
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
There's a lot of discussion of mycoplasma on the www.roadback.com website. It's believed that it contributes and/is the cause of most autoimmune disease.
The meds used are primarily minocycline. Second is doxycycline. IV Clindamycin is also used in conjunction with minocycline.
Posts: 964 | From san diego | Registered: Oct 2009
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posted
I'm not coughing up stuff from my lungs anymore, but doubt the myco is gone as I have only been treating a few months. My ears are still blocked (a straight year now) and some other symptoms I attribute to myco are hanging on. I'm on abx and a variety of herbal meds and other supplements.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
SBH, What are the herbal supplements you take for it?
Thanks.
Bailbeypup,
I didn't see much on that site you mentioned. It's hard to navigate. Do you have a shortcut to the discussion part?
Thanks.
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
Like the rest of you, I have also tested positive for mycoplasma pneumoniae.
I'm seeing 2 more doctors this month, but the doctor I have been seeing didn't place too much emphasis on it. To him, it was just another piece of evidence that lyme is in my body, but not necessarily something to be treated individually.
I'm wondering if by positive, do you all mean on the IGG or IGM. Mine is only positive for the IGG so I'm questioning if that makes a difference!?
Thanks!
Posts: 82 | From NJ | Registered: Mar 2011
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Mine is on the IGG. According to Dr. Garth Nicholson, " Since M. pneumoniae is an intracellular infection, meaning that it hides inside cells where it cannot stimulate much of an immune response, when an immune response is detected, especially in high titers, it usually means that the infection is active and some microorganism is being released from cells."
When my IgG was a little lower (1.61) I felt better although not completely well. Now it's 2.21 and I am a sick puppy. The change happened in four months.
Dr. B. believes that if you are treated for Lyme and coinfections, but still unwell, look for the myco. He calls it the "chronic fatigue germ."
Myco has very similar symptoms to Lyme. My LLMD checked my CD57 and it was 125. My ferritin was 62. It's not the Lyme or Babesia. It's the Myco P. making me verry sick.
Check out immed.org Garth Nicolson's site. If you email him he will send a download of info.
I don't have the pulmonary symptoms of myco P. Just the neruological and neuropathy and chronic fatigue.
If you are treating Lyme with doxy/zith you have it covered. If you doc prescribes cipro/levaquin you are covered.
Myco P. is a bacteria with some viral properties. Sometimes antivirals are prescribed as well.
Lauricidin, a supplement, may be helpful as an adjunct, but not as a sole treatment. Olive Leaf is used, too.
Posts: 1954 | From Illinois | Registered: Aug 2007
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