Im thinking of going to the Fibromyalgia and Fatigue centers to see if they can help with my constant fatigue, and fibromyalgia pain.
Anyone here have any experience with this type of treatment center? It's very expensive and I am already spending so much with my LLMD. But I'll sell something to get more help.
Since the hot humid weather started my pain and fatigue is unbearable again. Im starting to think I was feeling better due to weather only and not all these antibiotics I'm taking.....so frustrated right now, and need some relief.
Posted by sparkle7 (Member # 10397) on :
The didn't help me. It was very expensive.
Posted by jarjar (Member # 8847) on :
Most of the feedback on those places are negative.
Posted by Lymetoo (Member # 743) on :
Depends upon which state. They are very expensive and some have knowledge of Lyme and some don't.
Are you being treated for Lyme & Co???
Posted by Jennifer70 (Member # 30280) on :
Yes I am. I have an LLMD, since Janurary...I think I'm just getting antsy, I can't deal with the pain any more. I have my LLMD Apt tomorrow.
Atlanta.
Posted by Lymetoo (Member # 743) on :
It takes awhile to clear Lyme!! Make sure you get treated for possible babesia. Most people have at least one coinfection.
Posted by Jennifer70 (Member # 30280) on :
yes, she tried to treat bartonella and i had a backward spiral.......it was right after i was sick with tonsillitis and strep, and i had an allergic reaction to the antibiotic.
Also my pain was off the charts. I couldn't handle it. So she put me back on the doxy and zith for a while. Im sure she'll want to try again, Im just not looking forward to it.
Posted by Jennifer70 (Member # 30280) on :
Thank you all, I think I'll cancel my appt with the fibro center.
Posted by Lymetoo (Member # 743) on :
ugh on the bart .. sorry to hear
babesia causes a lot of pain
Posted by WhitneyS (Member # 25666) on :
I have been treated at the Fibro and Fatigue Center in Portland, and it was what eventually lead to my lyme diagnosis. It depends on what Dr you get-- but money wise it is a deal. You pay $6,000. for a year of unlimited supplements, drs appointments and IV nutrition. If youre doing the IV they will def even out on cost.
I don't have pain, so from that standpoint its hard to judge. But I know alot of people i talk to in the office have had very good luck. BUT again, there are totally different Drs in the different clinics. So I can only speak for Oregon.
Posted by sparkle7 (Member # 10397) on :
I guess they changed their payment plan. I went through $10 grand in a few months. It was nice that they recognized Fibro as a real illness. I went about 6 years ago & it was hard to get any straight answers about Fibro back then.
They sold me lots of overpriced supplements, injections, & drips & I got nowhere.
They told me that I had Lyme & not Fibro. I tried treating Lyme but got nowhere with that, too. I don't think I actually had Lyme or Fibro. I think the root of my problem is parasites.
I took an $11 anti-parasite supplement & got really far with it. I wish I tried this 16 years ago! Lyme (and co-infections) are really tricky since the tests aren't accurate. The symptoms are similar to alot of different illnesses.
Good luck!
Posted by Darla123 (Member # 31815) on :
Hi Im having lots of pain and began last week with spasms in my neck and back. Does Lymes cause muscle spasms as well?? So for I havnt taken any meds for pain but wow these spasms or terrible any advice would be appreciated. Thanks
Posted by lymeboy (Member # 24769) on :
Bart causes a lot of muscle twitching. I had HORRENDOUS muscle twitching until I treated Bart. It is said that treating Bart is key to getting to the next level. I know it was for me.
Posted by t9im (Member # 25489) on :
Darla123:
Your symptoms sound like lyme. I would recommend a decent LLMD exam with a Igenex WB plus a co infection pannel.
If you have lyme odds favor another TBD as well.
Posted by Jennifer70 (Member # 30280) on :
Darla I had horrible muscle spasms and twitching...even my whole body would jerk on it's own when I would lay down at night.
Lyme must cause some of that because although I still have it somewhat ..that's gotten alot better just by treating the lyme. I haven't started on coinfections yet.
Posted by mom2kids (Member # 31972) on :
I knew somebody that spent $27,000 in less than a year at one of those centers and was not any better. I have heard very few good things about them so IMO I would be cautious.
Posted by Toppers (Member # 20083) on :
I blew $700 at a local one and am grateful that's all. This experts idea of Lyme treatment was 100 mg doxy x2 for everything. Lame places
Posted by Jennifer70 (Member # 30280) on :
Wow! ok Im definitely cancelling my appt, thanks y'all. I need to do more research on my own about adrenal issues, weight gain and thyroid, and lyme......i have such a hard time reading, I get so dizzy.
Im so desperate to get my metabolism back to normal....fix my fatigue...and reverse this weight gain!
I live in a really bad state, there's no one that knows anything about lyme here.
Posted by sandim (Member # 30251) on :
I went there for a year. The doctor I saw was pretty good, but a lot of shady things happened while I was there. They went through 2 receptionists, 2 managers, 1 doctor and 3 nurses. I advise people to go somewhere else.