My number went from 66 to 138 with two months treatment of Biaxin/Plaquenil combo. My question is, can anything else cause the number to go up, besides improvement from lyme?
Thanks.
Posted by joalo (Member # 12752) on :
Up.
Posted by sandim (Member # 30251) on :
Don't think so. Looks like your immune system is improving.
Posted by undiagnosed22 (Member # 28152) on :
Are you feeling a lot better?
Posted by undiagnosed22 (Member # 28152) on :
Are you feeling a lot better?
Posted by fflutterby (Member # 28081) on :
up
Posted by nefferdun (Member # 20157) on :
That is great! When it is over 120, you are much less likely to relapse. I don't know of anything else that could have effected it. That is supposed to be typical. It doesn't slowly climb up - it leaps.
Posted by amk33 (Member # 13206) on :
I am not feeling better. I've been treated many times for the past ten years, and nothing has worked...only slight improvement, with major backsliding after stopping treatment. I have never been on plaqeunil before, and never tracked my treatment with the CD57 test, so, as u can imagine, I'm a little skeptical about the results, and whether I am having real improvement. I'll keep my fingers crossed.
Posted by lymeinhell (Member # 4622) on :
Picked a good day to do the test?
The number can vary dramatically from day to day, and there is no correlation between feeling good/increase in #. It's used as a diagnostic tool. Somewhere on here is tons of research to support that.
From my own personal experience: I never got above a 21 on an absolute basis, yet I improved significantly and went off abx after 9 mos. That was more than 6.5 yrs ago. We tested it every 6 mos for 2 yrs and I still never got higher than 21. But I feel great. Never relapsed. So go figure.
Posted by Robin123 (Member # 9197) on :
My CD57 count has been in the 140s all along - I asked the originator of the test about it and he said Lyme patients can have a higher CD57 count and still be ill, just as AIDS patients can have a higher CD4 count.
But still, as a Lyme patient listening to others in support groups, sounds like yours is moving in the right direction.
![[Frown]](frown.gif)
I've been treated many times for the past ten years, and nothing has worked...only slight improvement, with major backsliding after stopping treatment. I have never been on plaqeunil before, and never tracked my treatment with the CD57 test, so, as u can imagine, I'm a little skeptical about the results, and whether I am having real improvement. I'll keep my fingers crossed.