posted
My number went from 66 to 138 with two months treatment of Biaxin/Plaquenil combo. My question is, can anything else cause the number to go up, besides improvement from lyme?
joalo
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posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Are you feeling a lot better?
Posts: 200 | From Boston | Registered: Sep 2010
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fflutterby
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up
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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nefferdun
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That is great! When it is over 120, you are much less likely to relapse. I don't know of anything else that could have effected it. That is supposed to be typical. It doesn't slowly climb up - it leaps.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I am not feeling better. I've been treated many times for the past ten years, and nothing has worked...only slight improvement, with major backsliding after stopping treatment. I have never been on plaqeunil before, and never tracked my treatment with the CD57 test, so, as u can imagine, I'm a little skeptical about the results, and whether I am having real improvement. I'll keep my fingers crossed.
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lymeinhell
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Picked a good day to do the test?
The number can vary dramatically from day to day, and there is no correlation between feeling good/increase in #. It's used as a diagnostic tool. Somewhere on here is tons of research to support that.
From my own personal experience: I never got above a 21 on an absolute basis, yet I improved significantly and went off abx after 9 mos. That was more than 6.5 yrs ago. We tested it every 6 mos for 2 yrs and I still never got higher than 21. But I feel great. Never relapsed. So go figure.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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My CD57 count has been in the 140s all along - I asked the originator of the test about it and he said Lyme patients can have a higher CD57 count and still be ill, just as AIDS patients can have a higher CD4 count.
But still, as a Lyme patient listening to others in support groups, sounds like yours is moving in the right direction.
Posts: 13116 | From San Francisco | Registered: May 2006
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I've been treated many times for the past ten years, and nothing has worked...only slight improvement, with major backsliding after stopping treatment. I have never been on plaqeunil before, and never tracked my treatment with the CD57 test, so, as u can imagine, I'm a little skeptical about the results, and whether I am having real improvement. I'll keep my fingers crossed.
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