I was wondering how many people have gotten autoimmune conditions after getting Lyme? I was diagnosed with ic, psoriasis, osteoarthritis, and psos. I keep waiting for the next ball to drop. Do any of your conditions go away after proper treatment?
Posted by Lymetoo (Member # 743) on :
I have IC but it's not an autoimmune problem. It got WAY better with Lyme treatment.
I do have Sjogren's now. Oh joy. I think I've had it quite awhile.
--Do you mean PCOS??
Posted by sandim (Member # 30251) on :
Yes. Sorry. I have pcos too. How do you handle the sjogrens if you can't take immune suppressants?
Posted by Lymetoo (Member # 743) on :
Just toughing it out. I am on 10mg of cortef for adrenals and I guess it helps some.
Posted by sandim (Member # 30251) on :
Up
Posted by onbam (Member # 23758) on :
There are certain tissue types associated with this, like HLA-DR4 and DQB1 0602, which have been reported to lead to RA and MS, respectively.
Posted by davidx (Member # 8326) on :
I am currently dealing with auto-immune neuropathy that was most likely as a result of a lyme.
After having been treated for a number of years for lyme and co-infections, no one can be certain if and when the auto-immune condition will get better. Hopefully I am one of the lucky ones one day!
There are some people who do take low-dose immuno-suppressants (not steroids) to help (i.e. imuran, etc) but it depends on your situation and what the doctor(s) think.
Hope you feel better...
-David
Posted by sandim (Member # 30251) on :
Thanks, David! Do you think you got the neuropathy from the medications?
Posted by baileypup (Member # 22824) on :
Check out www.roadback.org. It is a site for infection-based autoimmune disease. Many have discovered they have lyme.
Posted by davidx (Member # 8326) on :
It was not caused by any medications because my neuropathy was the first symptom I got many years ago which eventually led to a lyme diagnosis.
I am currently on IVIG which seems to help somewhat and helps to confirm an auto-immune diagnosis (along with some blood work).