LymeNet Flash: Autoimmune

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Autoimmune

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Author

Topic: Autoimmune

sandim
LymeNet Contributor
Member # 30251

posted

I was wondering how many people have gotten autoimmune conditions after getting Lyme? I was diagnosed with ic, psoriasis, osteoarthritis, and psos. I keep waiting for the next ball to drop. Do any of your conditions go away after proper treatment?

Posts: 144 | From Pennsylvania | Registered: Jan 2011 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I have IC but it's not an autoimmune problem. It got WAY better with Lyme treatment.

I do have Sjogren's now. Oh joy. I think I've had it quite awhile.

--Do you mean PCOS??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

sandim
LymeNet Contributor
Member # 30251

posted

Yes. Sorry. I have pcos too. How do you handle the sjogrens if you can't take immune suppressants?

Posts: 144 | From Pennsylvania | Registered: Jan 2011 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Just toughing it out. I am on 10mg of cortef for adrenals and I guess it helps some.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

sandim
LymeNet Contributor
Member # 30251

posted

Posts: 144 | From Pennsylvania | Registered: Jan 2011 | IP: Logged |

onbam
Unregistered

posted

There are certain tissue types associated with this, like HLA-DR4 and DQB1 0602, which have been reported to lead to RA and MS, respectively.

IP: Logged |

davidx
LymeNet Contributor
Member # 8326

posted

I am currently dealing with auto-immune neuropathy that was most likely as a result of a lyme.

After having been treated for a number of years for lyme and co-infections, no one can be certain if and when the auto-immune condition will get better. Hopefully I am one of the lucky ones one day!

There are some people who do take low-dose immuno-suppressants (not steroids) to help (i.e. imuran, etc) but it depends on your situation and what the doctor(s) think.

Hope you feel better...

-David

--------------------
Same nightmare, different day!

Posts: 401 | From East Coast | Registered: Nov 2005 | IP: Logged |

sandim
LymeNet Contributor
Member # 30251

posted

Thanks, David! Do you think you got the neuropathy from the medications?

Posts: 144 | From Pennsylvania | Registered: Jan 2011 | IP: Logged |

baileypup
LymeNet Contributor
Member # 22824

posted

Check out www.roadback.org. It is a site for infection-based autoimmune disease. Many have discovered they have lyme.

Posts: 964 | From san diego | Registered: Oct 2009 | IP: Logged |

davidx
LymeNet Contributor
Member # 8326

posted

It was not caused by any medications because my neuropathy was the first symptom I got many years ago which eventually led to a lyme diagnosis.

I am currently on IVIG which seems to help somewhat and helps to confirm an auto-immune diagnosis (along with some blood work).

-David

--------------------
Same nightmare, different day!

Posts: 401 | From East Coast | Registered: Nov 2005 | IP: Logged |

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