I would very much appreciate your experiences/input on this topic. If you don't want to post publicly I'd appreciate a PM.
Thanks in advance, AS
Posted by Razzle (Member # 30398) on :
I think I remember something about Babesiosis causing this possibly....someone please correct me if I'm wrong...
Posted by onbam (Member # 23758) on :
This is a textbook babs symptom...the kind even ID ducks recognize as hallmark.
Posted by AlanaSuzanne (Member # 25882) on :
Yes, Babesia can cause Hemolytic Anemia. And the sx of HA and Babs are similar.
Thx Razzle.
Posted by AlanaSuzanne (Member # 25882) on :
Thx Onbam. My fear is that I have a LL Hematologist who is very concerned about this Hemolytic Anemia. He believes this isn't related to tick-borne disease. I don't know if he's right or wrong. All I know is I'm really scared.
Posted by seibertneurolyme (Member # 6416) on :
Have you been tracking your RBC and other blood markers? For hubby since he has done very aggressive babesia treatment he has been getting weekly bloodwork. It is very easy to see when he has a die-off from the babesia treatment.
But you also should be aware that some strains of bartonella can cause anemia as well. For a year or two hubby had borderline low RBC. Both the WBC and RBC increased to normal when he added factive to his treatment meds.
Of course that has all changed since moving on to aggressive babs treatment. But there was a period of 6 months to a year where the counts stayed in the normal range -- and this was even after discontinuing the factive. At the same time his bloodslides showed decreases in the number of coccobacilli seen.
Bea Seibert
Posted by glm1111 (Member # 16556) on :
Alana,
If your doc doesn't believe it's tick borne related, it's possible that you could have a hookworm infection which is also known to cause anemia. Hope you find an answer
Gael
Posted by jazzygirl24 (Member # 30829) on :
Hi Alana,
This is a little out there, but you can look up PNH which is paroxsymal nocturnal hemoglobinuria, is a rare disease, I beleive the blood test is simple, I think they test the complement system.
Symptoms are fatigue, weakness, blood clots, nausea, abdominal pain, back pain, shortness of breath. Not Lyme and co related at all.