posted
I would very much appreciate your experiences/input on this topic. If you don't want to post publicly I'd appreciate a PM.
Thanks in advance, AS
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I think I remember something about Babesiosis causing this possibly....someone please correct me if I'm wrong...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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onbam
Unregistered
posted
This is a textbook babs symptom...the kind even ID ducks recognize as hallmark.
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posted
Yes, Babesia can cause Hemolytic Anemia. And the sx of HA and Babs are similar.
Thx Razzle.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
Thx Onbam. My fear is that I have a LL Hematologist who is very concerned about this Hemolytic Anemia. He believes this isn't related to tick-borne disease. I don't know if he's right or wrong. All I know is I'm really scared.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
Have you been tracking your RBC and other blood markers? For hubby since he has done very aggressive babesia treatment he has been getting weekly bloodwork. It is very easy to see when he has a die-off from the babesia treatment.
But you also should be aware that some strains of bartonella can cause anemia as well. For a year or two hubby had borderline low RBC. Both the WBC and RBC increased to normal when he added factive to his treatment meds.
Of course that has all changed since moving on to aggressive babs treatment. But there was a period of 6 months to a year where the counts stayed in the normal range -- and this was even after discontinuing the factive. At the same time his bloodslides showed decreases in the number of coccobacilli seen.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Alana,
If your doc doesn't believe it's tick borne related, it's possible that you could have a hookworm infection which is also known to cause anemia. Hope you find an answer
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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This is a little out there, but you can look up PNH which is paroxsymal nocturnal hemoglobinuria, is a rare disease, I beleive the blood test is simple, I think they test the complement system.
Symptoms are fatigue, weakness, blood clots, nausea, abdominal pain, back pain, shortness of breath. Not Lyme and co related at all.
Grace
Posts: 27 | From central nj | Registered: Mar 2011
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