Have you treated yourself for KPU? (out of sheer curiosity)
Posted by chaps (Member # 25286) on :
I have been waiting to take KPU therapy because I heard (or read) that if you have a lot of mercury to detox, the therapy might be risky, i.e., too much detoxing too fast. So I'm waiting until I complete some natural chelation protocols before beginning this.
Does that sound right?
Posted by RC1 (Member # 31923) on :
Hey GiGi, I have been getting together all of the info on this, what to order, so on. What I can't find is what to do for maintainence, I saw that you would do the protocol for 3-4 months. Do you just continue with Core? He says that less zinc will be required after. Do you know?
Posted by RC1 (Member # 31923) on :
Does anyone know if KPU is related to HLA-DR or the MTHFR gene mutation?
Posted by pepperspeck (Member # 18837) on :
If there are abnormally high levels of porphyrins in the blood in a neurolyme patient is this something that is related?
Posted by karenl (Member # 17753) on :
Not sure the porph is also from toxins and from parasites but would also be interested if KPU can change it.
Posted by GiGi (Member # 259) on :
Canefan, I do not have a problem with KPU - one of the few. I also did not have a single food allergy on AI. My husband does. As I keep testing him for Core, I test myself.
RC1, It takes a long time to need less. Energetic testing helps to keep an eye on it. Sometimes my husband needs even more; sometimes less. But 4 Core most the time.
Have not run into anyone in two years that could stop the CORE as long as overall symptoms persist. Why worry about tomorrow. 80% of Lymies have KPU! even without white spots on nails. Do the test on www.HPUtest.de (English version).
Re gene mutations - listen to the whole video. DK explains it at length.
Pepperspeck, I don't want to answer this. Most is explained at length in the video.
The test is not expensive. I would suggest doing it - but doing it right: follow the instructions very carefully.
You cannot solve detox problems unless you solve KPU. Waiting to reduce the load if you are unable to reduce the load with KPU, why ask for crashing? hanging on to the toxins being reabsorbed and recirculated again and again, if you can avoid it. Does not make sense to me.
Again, take the time and listen to the video. It is a perfect explanation and it is free!!!!!!
Take care.
P.S. The KPU test at Vitamin Research costs $60. Any good ART tester can confirm that also.
Posted by Robin123 (Member # 9197) on :
Gigi, regarding your comment that we can't detox until we do a KPU protocol, which I've never done, I'm wondering if you could comment on the meaning of my recent successful experience detoxing on a FIR biomat -
after 6 months sweating toxins out, I am finally able to start handling chemical smells and touch, and am very pleased, as I have had extreme MCS. Maybe there's different kinds of detoxing?
Posted by momlyme (Member # 27775) on :
Robin, perhaps you don't have KPU?
Do you have any heavy metal risk... amalgams (yourself or your mother) or renovating old buildings?
(Lyme and Autism are many times the same thing)
Posted by GiGi (Member # 259) on :
Robin, so glad you are now able to handle the smells, etc. That is a great step forward.
I am referring to the ability to have the agents on board necessary for detoxing all the way toward wellness/symptomfree and staying well. It took me five years to do that even without KPU being a problem for me. When the toxic burden is still high, it is very difficult to bring infections under control. All have to be addressed simultaneously. KPU and parasites are the biggest hindrance, as I can see it. AI plays a major role in detoxing heavy metals. I am still clearing toxic metals mainly out of bones, without any major symptom or problem.
Take care.
Posted by SForsgren (Member # 7686) on :
While not always easy at the beginning, KPU treatment has been a key part of my forward progress. I think one has to go slowly and carefully, but I do think this is a big piece of the puzzle.
Posted by canefan17 (Member # 22149) on :
Do you guys think KPU is right up there with parasites as one of the most overlooked aspects to Lyme Disease?
Posted by GiGi (Member # 259) on :
Unless you give the body back what it needs to have to put out the fire, i.e. zinc and company as contained in CORE, the struggle continues. Reducing the toxic load which is primary if you want to get well is the first order of business.
Most people on abx fail because they forgot or don't realize how much toxin they have accumulated. Car and dirty engine?
If you have KPU and don't address it, you are only adding more to the toxic heep. The body is unable to detoxify without adequate zinc and other nutrients/enzymes to activate it. Organ blockage and failure is the result. You need to treat both - KPU and parasites. The parasites are the "aircraft carrier" holding on to metals, fungi, bacteria, viruses, and more.
It is by now generally agreed upon by the experts that we are dealing with more than just Lyme.
Take care.
Posted by canefan17 (Member # 22149) on :
Thanks gigi
Posted by SForsgren (Member # 7686) on :
The newer bit of info is that if you have elevated MMP-9, you should not start adding zinc or MMP-9 will only become more elevated. It would be wise to have your doctor check MMP-9 before adding supplemental zinc.
Posted by RC1 (Member # 31923) on :
Scott, Where can I read about zinc elevating MMP-9? Thanks, R
Posted by chootik (Member # 11221) on :
Can anyone tell me how is this different from the Methalation Protocol?
I know that also uses the B Vitamins.
Just curious. Chootik
Posted by SForsgren (Member # 7686) on :
If you google 'MMP9 zinc' you will find lots of info that suggests:
Matrix metalloproteinases are a family of zinc and calcium-dependent endopeptidases
It may be the case that the body downregulates zinc as an adaptive response to keep the inflammation from going out of control and when you add zinc, you could be adding fuel to the fire - if MMP9 is elevated.
This has been discussed at a couple of recent Dr. K events.
Posted by RC1 (Member # 31923) on :
Thanks Scott R
Posted by Robin123 (Member # 9197) on :
Scott, or anyone - I remember once, at a candida group, we all tasted a small bit of some liquid. If we couldn't taste anything, that meant we were zinc-deficient.
Well, I was one of those who couldn't taste anything - it was bland, like water. Do you know anything about a zinc test like that?
Posted by Spindleshanks (Member # 32556) on :
Is the KPU test just a urine sample? That is what my MD did and it came back just saying neg. Does that sound like the proper test?
Posted by canefan17 (Member # 22149) on :
Hey GiGi,
Random question for you pertaining to KPU.
Dr K talked about it's better to do the urine test for KPU when you're under a bit of stress (since HPU tends to be higher during these times)
Well whenever I get stressed out or really worked up... I can literally SMELL my body odor emitting something. lol
It's the strangest thing but it makes me smell bad. What could this be? Could this be what Dr K is talking about?
Or when we get stressed do we release certain hormones that we could be smelling?
Posted by GiGi (Member # 259) on :
Robin, The mineral tasting test went out the window several years ago. It was found to be inconclusive -- it didn't work.
Take care.
Posted by karenl (Member # 17753) on :
I have very low zinc but if I substitute with just 5 mg I get sick for two weeks - is this the MMP9 problem? I probably need to test.
Posted by canefan17 (Member # 22149) on :
Karen,
Why not just take Knotweed or Turmeric or something that regulates MMP9 ?
: )
Posted by Tammy N. (Member # 26835) on :
I think KPU is a huge piece of the puzzle for a lot of us. Thanks to Dr. K for his teachings, and to Gigi for reminding us all of this.
Scott - never heard this before. I had a major zinc deficiency, so have been treating with CORE for months (and zinc has come up in recent bloodwork:). But I do have elevated MMP-9. I have been suffering with major inflammation/infection in my mouth since a tooth extraction in early March. I've been going for ozone injections, neural therapy, etc. but the pain has been massive, as has the inflammation. Can't seem to relieve it.... maybe it has something to do with supplementing zinc with elevated MMP-9. Very interesting. Because I thought my jawbone was not recovering normally, I have been careful not to miss any Core supplements. Now I'm wondering if this is what may be triggering this insane inflammation (my gum and neighboring tooth throb with my heartbeat). I will raise this with my Seattle doc. For now, I think I will lay off the Core for just a few days and see if I get any relief. I think treating KPU is of critical importance, but I want to run this all by my doctor.
If anyone else has more info on this (as relates to elevated MMP-9), please share. Thanks.
Posted by Tammy N. (Member # 26835) on :
I remembered wrong... I just re-checked my bloodwork and do not have elevated MMP-9 (I have other elevated markers but not this one).
I still think it's an interesting thought that perhaps the body is down-regulating zinc to help balance out against an inflammatory response. I would imagine that it may relate to a lot more than just MMP-9. And I find it even more interesting that a lot of us have KPU/zinc deficiency. Obviously, heavy metal toxicity plays a role, but it makes me wonder what else causes this depletion???
Posted by canefan17 (Member # 22149) on :
What blood tests shows MMP-9 ?
Posted by Jane2904 (Member # 15917) on :
anyone on the core have problems tolerating the supplement?
Daughter has been on this supplement for over three months, took individual supplements before.
Notice lately that soon after taking 2 capsules, she feels dizzy. lightheaded, etc.
Thanks for any input.
Posted by Mo (Member # 2863) on :
researching here. up for more conversation.
Posted by canefan17 (Member # 22149) on :
I just started
1 cap once a day Posted by AZURE WISH (Member # 804) on :
Does anyone have the cliff notes to the video? or an article that explains the things.
i am in far to much pain to watch it. 2 minutes i could maybe do, with a pause. 2 hours, no way.
i am really curious about the porphorin question pepperspeck asked except high in the urine not the blood....
also is there any way that a high carb diet would help symptoms of kpu.... and cutting them to low carb make them worse?
and does it have to be the coroporphrin thats high or can it be others?
any info is greatly appreciate. links to articles websites . thank you
Posted by AZURE WISH (Member # 804) on :
i did do a search hear for kpu and it really didnt answer any of my questions. any other info appreciated.
Posted by canefan17 (Member # 22149) on :
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