Hello everyone, lately (the past 6 months or so) my toes, especially my big toes
have been very red and inflamed. The bottoms of both my feet are inflamed also.
The nerves buzz bad and the toes are burning like fire, usually afternoon till around 8 pm or so.
This bad burning comes and goes, but the redness in the toes is always there.
I generally have inflammation from the knees down. Anyway, I have been on the IV Rocephin for 2 weeks so far.
Do you think this is just neuropathy starting. I wish there was a safe and EFFECTIVE anti-inflammatory for this condition.
My ID doc gave me a script today for neurotin, has anyone has any luck with it, any bad side effects?
I feel like my toes will eventually fail and I am afraid of amputation (eventually).
I am very scared to say the least. I am not diabetic either, been tested many times.
By the time I get home from work, I can walk in pain, lots of burning though.
If I attempt to cut my grass with the tractor, the vibration from the tractor coming through the pedals makes
the nerves in my feet got nuts, it's very painful. Do you think this will reverse with the IV treatment (somewhat).
I ALSO noticed that if I lean on my leg with lets just say my elbow for a minute or two, I get large red circles
that can take a few minutes to go away. I find this to be abnormal. I could see if I leaned on it for 15 minutes
it might take a minute or two to go away, but not such short time frames. This also scares me,
I feel as is something is wrong with my blood. I had my heart checked out a month ago,
nothing is wrong they say. Along with this is very blurry vision which comes and goes,
sometimes I can see fine and lately not at all....I hate this damn disease.
Any and all thought/responses truly appreciated....Thanks, Rich
Posted by RC1 (Member # 31923) on :
When I first got sick my hands were inflamed, fingers mostly, they would burn so bad I would ice them. When I treated for Bartonella it got way better. Also I believe that Bartonella is vascular. My vision has improved some too, I'm treating Lyme now, going back to Bart soon, hoping that my eyes will come back. My two cents, I'm not a doctor, I just wish I was.
Posted by Carol in PA (Member # 5338) on :
Hi, All the tests over the years and no positives for Bart ever....hum
Carol, not everyday....I guess I should....Thanks
Posted by Razzle (Member # 30398) on :
Might want to try epsom salt soaks in warm bathwater several times a day for the inflammation.
Also make sure you are getting enough Vitamin B12, as well as B-Complex vitamins, magnesium, essential fatty acids, electrolytes (calcium, magnesium, potassium, sodium, chloride), and trace minerals.
Posted by Fordace (Member # 14874) on :
The inflammation is really bad in my feet, I feel like I am walking on gel inserts.
Toes are all red, Red streaks under the big toe nails...Across the big toes,
the redness goes diagonal across the toes and then just stops...I hope the IV helps too...
Thank you
Posted by Carol in PA (Member # 5338) on :
Fordace, Did you take B12? Any progress with your feet?
Posted by Fordace (Member # 14874) on :
Hi Carol, I Haven't been taking it consistently, I get I should.
I am so sick of taking all this stuff with no real results, you know?
Feet are the same, don't think the IV is helping the damage from neuropathy.
I think I might be hypercoagulated at this point...Thanks, Rich
Posted by nefferdun (Member # 20157) on :
Alpha Lipoic Acid is the best thing to take for neuropathy. Trials have been done with diabetics and they experienced significant relief.
But it is probably caused by an infection which you might not be treating. Do you have other symptoms?
Posted by scorpiogirl (Member # 31907) on :
Sounds like Bart... and have similar problem. Been on IV for 4 months B12 injections 3 and still not improving. Posted by finallylyme (Member # 33807) on :
I have peripheral neuropathy from the lyme. Partial numbness and burning to mid thigh and just below my elbows. I take neurontin and nortriptylline for my PN. I do think the neurontin works. I have never had inflammation of the toes or soles though, so I don't know about that. I was treated previously for a B12 deficiency - by injections. Oral B12 does not absorb well enough to make a difference. Injections did not work for me since I have lyme neuropathy and not a B12 deficiency - I just ended up with a higher B12 level!
![[Frown]](frown.gif)