posted
When I first got sick my hands were inflamed, fingers mostly, they would burn so bad I would ice them. When I treated for Bartonella it got way better. Also I believe that Bartonella is vascular. My vision has improved some too, I'm treating Lyme now, going back to Bart soon, hoping that my eyes will come back. My two cents, I'm not a doctor, I just wish I was.
Posts: 845 | From Northeast | Registered: May 2011
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Are you taking sublingual B12 for the neuropathy?
posted
Hi, All the tests over the years and no positives for Bart ever....hum
Carol, not everyday....I guess I should....Thanks
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Might want to try epsom salt soaks in warm bathwater several times a day for the inflammation.
Also make sure you are getting enough Vitamin B12, as well as B-Complex vitamins, magnesium, essential fatty acids, electrolytes (calcium, magnesium, potassium, sodium, chloride), and trace minerals.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Hi Carol, I Haven't been taking it consistently, I get I should.
I am so sick of taking all this stuff with no real results, you know?
Feet are the same, don't think the IV is helping the damage from neuropathy.
I think I might be hypercoagulated at this point...Thanks, Rich
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Alpha Lipoic Acid is the best thing to take for neuropathy. Trials have been done with diabetics and they experienced significant relief.
But it is probably caused by an infection which you might not be treating. Do you have other symptoms?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Sounds like Bart... and have similar problem. Been on IV for 4 months B12 injections 3 and still not improving.
posted
I have peripheral neuropathy from the lyme. Partial numbness and burning to mid thigh and just below my elbows. I take neurontin and nortriptylline for my PN. I do think the neurontin works. I have never had inflammation of the toes or soles though, so I don't know about that. I was treated previously for a B12 deficiency - by injections. Oral B12 does not absorb well enough to make a difference. Injections did not work for me since I have lyme neuropathy and not a B12 deficiency - I just ended up with a higher B12 level!
-------------------- I have Lyme - but it doesn't have me. Posts: 70 | From ohio | Registered: Sep 2011
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