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Posted by abhistbuff (Member # 28230) on :
 
Is anyone else taking Questran (cholestyramine) ? Has it made anyone else herx like crazy?
 
Posted by joalo (Member # 12752) on :
 
Up for input.
 
Posted by phyl6648 (Member # 28522) on :
 
My LLMD just put me on it, haven't take it as I am debating.. so many meds.. She said it would help get rid of the biofilm.

She also changed my abx, just when I was getting comfortable with the protocol I was on. Changed to Omnicef and Ketek..

Hope to hear from others that are on it. Are you taking Questran if so is it helping?

Guess I will try all the meds and if they kill me so what..
 
Posted by sixgoofykids (Member # 11141) on :
 
Cholestyramine can cause a cytokine response. It's not technically a herx.

It's used for toxins and mold detox. I personally couldn't take it.
 
Posted by abhistbuff (Member # 28230) on :
 
Well it works because it causes a reaction similar to a herx, apparently I am full of toxins I guess. You have to take it apart from all of your other meds which makes it a challenge.
 
Posted by sixgoofykids (Member # 11141) on :
 
Right, it causes cytokines to flare making you feel achey and flu-like. It's not from a die-off or loose toxins, it's from a cytokine response. Dr. S recommends taking Actos with it to lessen that response. I couldn't take the Actos because of the blood sugar issues, so I couldn't take cholestyramine.

There are other ways to bind toxins. The reaction is not an indication of how well it's working, only how much of a cytokine reponse you're having. I'm not a fan of that reaction to cholestyramine. Some things I think you just have to suck it up and deal with the reaction, but to this one, I just don't see the benefit.

I'd talk to your doctor about it.

http://aboutmecfs.org.violet.arvixe.com/Conf/AACFS04Shoemaker.aspx
 
Posted by Lymetoo (Member # 743) on :
 
Hated it with a passion.

Be careful about Actos too.
 
Posted by imagine2 (Member # 3136) on :
 
Dr. S also uses Welchol for people that can't tolerate Cholestyramine.
 


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