LymeNet Flash: Question about Questran

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Question about Questran

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Author

Topic: Question about Questran

abhistbuff
Member
Member # 28230

posted

Is anyone else taking Questran (cholestyramine) ? Has it made anyone else herx like crazy?

Posts: 63 | From dc | Registered: Sep 2010 | IP: Logged |

joalo
Frequent Contributor (1K+ posts)
Member # 12752

posted

Up for input.

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Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007 | IP: Logged |

phyl6648
Frequent Contributor (1K+ posts)
Member # 28522

posted

My LLMD just put me on it, haven't take it as I am debating.. so many meds.. She said it would help get rid of the biofilm.

She also changed my abx, just when I was getting comfortable with the protocol I was on. Changed to Omnicef and Ketek..

Hope to hear from others that are on it. Are you taking Questran if so is it helping?

Guess I will try all the meds and if they kill me so what..

Posts: 1058 | From VA | Registered: Oct 2010 | IP: Logged |

sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141

posted

Cholestyramine can cause a cytokine response. It's not technically a herx.

It's used for toxins and mold detox. I personally couldn't take it.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

abhistbuff
Member
Member # 28230

posted

Well it works because it causes a reaction similar to a herx, apparently I am full of toxins I guess. You have to take it apart from all of your other meds which makes it a challenge.

Posts: 63 | From dc | Registered: Sep 2010 | IP: Logged |

sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141

posted

Right, it causes cytokines to flare making you feel achey and flu-like. It's not from a die-off or loose toxins, it's from a cytokine response. Dr. S recommends taking Actos with it to lessen that response. I couldn't take the Actos because of the blood sugar issues, so I couldn't take cholestyramine.

There are other ways to bind toxins. The reaction is not an indication of how well it's working, only how much of a cytokine reponse you're having. I'm not a fan of that reaction to cholestyramine. Some things I think you just have to suck it up and deal with the reaction, but to this one, I just don't see the benefit.

I'd talk to your doctor about it.

http://aboutmecfs.org.violet.arvixe.com/Conf/AACFS04Shoemaker.aspx

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Hated it with a passion.

Be careful about Actos too.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

imagine2
LymeNet Contributor
Member # 3136

posted

Dr. S also uses Welchol for people that can't tolerate Cholestyramine.

Posts: 677 | From Virginia | Registered: Sep 2002 | IP: Logged |

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