Dr. N., environmental medicine doctor, spoke at the ILADS conference today and gave the doctors a website to learn how to treat patients who have dysautonomia (which includes POTS). The site is:
NDRF.org
I haven't viewed the site myself. Hope this helps those of you who suffer with this.
Posted by Keebler (Member # 12673) on :
- Thanks, TF. I was unable to watch the lecture at that time. Sorry I missed it.
Along the lines of that presentation, here's a Chemical Sensitivity website that complements that one:
She was wonderful but remember she was treated at Dr. Rea's environmental clinic in Dallas, Tx. He is the best in the world for MCS...
Posted by suz9601 (Member # 6968) on :
Thanks for the website. Does anyone know if the conference will be played later ...I missed most of it. Thanks
Posted by Keebler (Member # 12673) on :
- Suz,
There are no plans at this time to replay the streams, although there has been a short loop of one doctor replaying.
As this was the first year ILADS did the streaming for 3 days, they may alter their plans.
Many of the sessions would cut in and out and I missed a lot. I don't know if they have some way to "make that up" but still, it was so nice to have this advantage to see what we could.
And it was free. I'm sure it cost ILADS a bundle. What a nice gift to let us see so much of that, even with technical blips.
However, if you missed some on Friday due to the streaming troubles, there's a link on IlADS conference page to have then email about how to see those sessions. Not sure how they will do that but put your email request in.
My being on the west coast also made viewing most of the impossible. I just can get up much before 9 a.m. - I tried but couldn't. And 9 a.m. here is lunchtime there.
As for others, the DVD of the whole conference (with slides, etc.) - or - individual sessions are for sale at about $15 each if you just want single sessions.
Some support groups may purchase some sessions or the whole set and have to rent or loan later.
Usually, on the website for The Better Health Guy, Scott F is pretty fast at getting up his synopsis note and then later a whole article on that for the PHA site. Keep your eyes on the ILADS site but also on these:
Public Health Alert (PHA) is a newspaper committed to researching and investigating Lyme Disease and other chronic illnesses in the United States. . . .
. . . PHA is a free monthly newspaper. We function on the sale of advertising space and donations from the public. We have nationwide distribution. -
Posted by Keebler (Member # 12673) on :
If you would like to view the presentations missed because of technical difficulties on Oct. 28th, please click here to signup to be notified when they will be online.
--- At the bottom of that page: MANY VIDEOs to view now, just not from this conference.
Purchase ILADS Toronto Lyme Disease Conference Videos
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If you see a presenter whose work interests you, Google their name. You might find some of their works or - a bonus. I found a very extensive website for one of the chemical sensitivity speakers yesterday. -
Posted by TF (Member # 14183) on :
I will be posting my notes of this particular session hopefully by tomorrow.