This is topic Can rifampin cause permanent damage? in forum Medical Questions at LymeNet Flash.


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Posted by lyme in Putnam (Member # 11561) on :
 
Damaged before, , but stopped it yesterday. Any chance of recouping some of me back. I tried so long for me, but after 2 mos, that's it.
 
Posted by chootik (Member # 11221) on :
 
Hi There.

I'm curious why was it so hard to take it? My doc wants me to take it and I would love to hear your feedback.
 
Posted by nonna05 (Member # 33557) on :
 
What's damaged?????? What dose??? I can't take the red 300's ,but I can take the 150 orange,only, Pharmacy has to chase this down,. Sandoz in Manufacuter..Then ins. wants to stay with 300 cause used to it... We just simply tell them I can;t take the fillers on those has to be 150. But that's when I'm on it. On others now.

How many years on ABX right now??
 
Posted by surprise (Member # 34987) on :
 
Lyme in Putnam, I am no expert, but feel compelled to say:

It didn't work out. Please don't beat yourself up. It's not your fault, or something you did wrong.

I saw your other post, too- could
you get some Valium maybe, just to take the edge off while this passes through?

The reduction in anxiety might help with the eating more...

Hang in there--
 
Posted by lyme in Putnam (Member # 11561) on :
 
Thanks. I'm on klonopin and am shoving food down my throat. When a lot going on you don't know what to do first for balance, I stopped rifampin sun for a while, llnd wants to correct hypoglycemia. Be well. Don't think rifampin was a good choice for me.
 
Posted by annier1071 (Member # 28977) on :
 
Rifampin left me with permanent nerve damage and I was only on it for a week. The LLMD stopped it right away but the shaking, vertigo and tingling in hands an feet never left me.

I think that many many people have horrible affects from it, while others say they had none. You did nothing wrong, there are so many other options out there. Feel better Putman
 
Posted by Catgirl (Member # 31149) on :
 
I've heard it really helps some people, and it's really horrible for others. I've talked to people who are even afraid to try it.

I think all any of us can do is try these drugs, and if it doesn't work out, we just need to move on and try something else. You gave it a good shot Putnam. There is something else out there for you. Hang in there!
 


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