I'm curious why was it so hard to take it? My doc wants me to take it and I would love to hear your feedback.
Posts: 247 | From Ca | Registered: Feb 2007
| IP: Logged |
nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
What's damaged?????? What dose??? I can't take the red 300's ,but I can take the 150 orange,only, Pharmacy has to chase this down,. Sandoz in Manufacuter..Then ins. wants to stay with 300 cause used to it... We just simply tell them I can;t take the fillers on those has to be 150. But that's when I'm on it. On others now.
How many years on ABX right now??
Posts: 2563 | From Denver,CO | Registered: Aug 2011
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Lyme in Putnam, I am no expert, but feel compelled to say:
It didn't work out. Please don't beat yourself up. It's not your fault, or something you did wrong.
I saw your other post, too- could you get some Valium maybe, just to take the edge off while this passes through?
The reduction in anxiety might help with the eating more...
Hang in there--
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Thanks. I'm on klonopin and am shoving food down my throat. When a lot going on you don't know what to do first for balance, I stopped rifampin sun for a while, llnd wants to correct hypoglycemia. Be well. Don't think rifampin was a good choice for me.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
posted
Rifampin left me with permanent nerve damage and I was only on it for a week. The LLMD stopped it right away but the shaking, vertigo and tingling in hands an feet never left me.
I think that many many people have horrible affects from it, while others say they had none. You did nothing wrong, there are so many other options out there. Feel better Putman
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I've heard it really helps some people, and it's really horrible for others. I've talked to people who are even afraid to try it.
I think all any of us can do is try these drugs, and if it doesn't work out, we just need to move on and try something else. You gave it a good shot Putnam. There is something else out there for you. Hang in there!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic