Just thought I would give an update (I've been away for a bit.)
I'm now 5 weeks into my drug Holiday and honestly I feel pretty good. I actually feel better now that I did 3-4 weeks ago. I hope this is a good sign. Were it not for the mild tinnitus and muscle twitching and very very mild night sweats I would think I'm done!
My foot / toe pain has gotten BETTER as the weeks have gone on. As has my vision and headaches.
Maybe my body needed a break and now my immune system is kicking in?? Who knows.
I restart my therapy in about a week (after being off for 7 weeks) and will hit the bugs hard with Bicillin 3x / week, Biaxin ER, Mepron, Plaquenil and Crypolepis. All drugs will be new to me, so I'm excited for a brand new procotol. (I've done Biaxin before but never Biaxin ER.)
I hope the bugs are out and about so I can hit them with a sneak attack (I'm starting with the bicillin first.)
Hang in there folks, and if you are in the 80-90% try an extended holiday. It may do you good!!
Posted by Hoops123 (Member # 18333) on :
Keep up the good work !
Posted by Jane2904 (Member # 15917) on :
Good Luck and glad you are feeling better.
Posted by Lymetoo (Member # 743) on :
Sometimes it means you can stop altogether!!
Glad you feel good!
Posted by dbpei (Member # 33574) on :
That's great to hear! Please keep us posted.
Posted by nefferdun (Member # 20157) on :
That is wonderful news, especially in the middle of winter when these bugs like to take over. I hope you continue to improve.
Posted by cht girl (Member # 26170) on :
I wish you the best....hope your battle is nearing the end.
Posted by PhillyLyme (Member # 26468) on :
bcb,
That is just awesome. I remember you saying you might be treating until spring time....looks like you might be right.
I am going pretty well for the most part. I see my LLMD in 2 weeks and I also thinking about taking an abx holiday.
I am almost sx free just some very small pain a few days a month....I am also dealing with some heart skipps or small anx...might for a herx or just my body needing more nutrians...
Anyway keep it up man and best of luck
Posted by CherylSue (Member # 13077) on :
That's so good to hear! If you relapse, be sure to get on meds right away. My doc said when I get to that point, he would pulse meds a week or so a month.
In anycase, fealing great is its own reward.
Posted by manybites (Member # 33750) on :
Good luck .The protocoll you are starting is a very good one!Keep us posted.
Posted by steve1906 (Member # 16206) on :
If you are around 90% better, and off meds for five weeks, why would go back on them? (Bicillin 3x / week, Biaxin ER, Mepron, Plaquenil and Crypolepis)
You said your remaining symptoms are> (mild tinnitus and muscle twitching and very very mild night sweats). And you feel better now than 3-4 weeks ago.
It sounds like you are continuing to improve � (with no meds).
Posted by LSG Scott (Member # 21624) on :
good for you man
Posted by Dogsandcats (Member # 28544) on :
Enjoy every minute.....good for you!
Posted by back2game (Member # 23927) on :
That's really great news, bcb! I know that my body told me no more abx. Please be very cautious re-starting.
Posted by merrygirl (Member # 12041) on :