Topic: Off all meds for 5 weeks now - Feeling pretty good!
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Hi folks:
Just thought I would give an update (I've been away for a bit.)
I'm now 5 weeks into my drug Holiday and honestly I feel pretty good. I actually feel better now that I did 3-4 weeks ago. I hope this is a good sign. Were it not for the mild tinnitus and muscle twitching and very very mild night sweats I would think I'm done!
My foot / toe pain has gotten BETTER as the weeks have gone on. As has my vision and headaches.
Maybe my body needed a break and now my immune system is kicking in?? Who knows.
I restart my therapy in about a week (after being off for 7 weeks) and will hit the bugs hard with Bicillin 3x / week, Biaxin ER, Mepron, Plaquenil and Crypolepis. All drugs will be new to me, so I'm excited for a brand new procotol. (I've done Biaxin before but never Biaxin ER.)
I hope the bugs are out and about so I can hit them with a sneak attack (I'm starting with the bicillin first.)
Hang in there folks, and if you are in the 80-90% try an extended holiday. It may do you good!!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
Sometimes it means you can stop altogether!!
Glad you feel good!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
That's great to hear! Please keep us posted.
Posts: 2387 | From New England | Registered: Aug 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
That is wonderful news, especially in the middle of winter when these bugs like to take over. I hope you continue to improve.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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That is just awesome. I remember you saying you might be treating until spring time....looks like you might be right.
I am going pretty well for the most part. I see my LLMD in 2 weeks and I also thinking about taking an abx holiday.
I am almost sx free just some very small pain a few days a month....I am also dealing with some heart skipps or small anx...might for a herx or just my body needing more nutrians...
Anyway keep it up man and best of luck
Posts: 324 | From Philly | Registered: Jun 2010
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
That's so good to hear! If you relapse, be sure to get on meds right away. My doc said when I get to that point, he would pulse meds a week or so a month.
In anycase, fealing great is its own reward.
Posts: 1954 | From Illinois | Registered: Aug 2007
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
Good luck .The protocoll you are starting is a very good one!Keep us posted.
Posts: 1379 | From disable | Registered: Aug 2011
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
If you are around 90% better, and off meds for five weeks, why would go back on them? (Bicillin 3x / week, Biaxin ER, Mepron, Plaquenil and Crypolepis)
You said your remaining symptoms are> (mild tinnitus and muscle twitching and very very mild night sweats). And you feel better now than 3-4 weeks ago.
It sounds like you are continuing to improve � (with no meds).
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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