This is topic very high ferritin and low iron...huh! in forum Medical Questions at LymeNet Flash.


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Posted by atheana58 (Member # 33429) on :
 
Hi to all,
I am not understanding my blood work. Could anyone help?
iron 35
% saturation 9
bilirubin, indirect 0.1
rdw high 15.7
hematocrit 34

hemoglobin 11.5
And finally Ferritin 1207 {this has me worried}

I thought with Lyme your Ferritin was meant to be low...I am so confused.
Does anyone else have any readings like this?
Thanks
 
Posted by WhitneyS (Member # 25666) on :
 
yes-- this happens

So feratin is ur emergency supply of iron. So if its high-- this is good. It not SUPPOSE to be low-- that means your body doesn't enough. If Iron is low, than it means you are starting to become deficient, but you haven't needed to use the emergency store yet (feratin)....get it?

It means you need to take iron. Try a slow release iron and make sure to take vitamin C with it, to help with absorption.
 
Posted by 2roads (Member # 4409) on :
 
What does it mean if your ferritin is low but your iron is good?
 
Posted by 2roads (Member # 4409) on :
 
What does it mean if your ferritin is low but your iron is good?
 
Posted by atheana58 (Member # 33429) on :
 
Whitneys= Thanks for clearing that up. But why do they say your ferritin levls should be no higher than 232? Mine is a lot higher than reference range.
My dr is having me take a stool test. Also, wants me to go on ferrous sulfate.
I am so weak today and my bloating is so painful.
 
Posted by BuffyFan (Member # 34679) on :
 
hm, I've read that a high ferritin level could mean there is inflammation in the body, you might want to check into that.
 
Posted by WhitneyS (Member # 25666) on :
 
Hmmm I'm not sure about it being bad--. Especially if he is in fact having you take Iron (ferrous sulfate). Try a slow release (like slow Fe) and the vitamin c should help too.
 
Posted by atheana58 (Member # 33429) on :
 
Thanks guys,
I do think its inflammation. I have to do some work on eating right and get Lymph massage.
Thanks for rec on type of iron to take, I will pop out today to get it. My Dr is not a LLMD, but he does try.
 
Posted by terv (Member # 29410) on :
 
Check out www.irondisorders.org

With high ferritin and low tsat there is a condition called anemia of chronic disease

http://www.irondisorders.org/anemia-of-chronic-disease

there is also iron overload with anemia.

http://www.irondisorders.org/Websites/idi/files/Content/854256/IOA%20ALL%202011.pdf

I would hold off on the iron pills until you determine what is causing your ferritin to be so high.
 
Posted by atheana58 (Member # 33429) on :
 
terv- thanks so much for the very informative websites. I am going to hold off on the iron.
Great advise.
You all are so great!
 
Posted by dal123 (Member # 6313) on :
 
Get therapeutic phlebotomy, at that level your organs start to rust, get genetic testing for hemachromatosis, this affects the liver, etc. You MUST have a hematologist on board that specializes in HH.
 
Posted by atheana58 (Member # 33429) on :
 
Thanks so much, dal123. I will check into this on Monday. I had a feeling I shouldnt add Iron, I was just a little worried as my body is so weak.
Thanks
 
Posted by terv (Member # 29410) on :
 
Iron Disorders has an email list that functions as a forum. You might want to join it and post your lab numbers. While most of the people on there have hemochromatosis, they are very knowledgeable about most iron issues and lab numbers.

http://www.irondisorders.org/online-discussion-group/
 


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