We live in the Minneapolis/St Paul area, but we will travel to see one. My son is 25.
Please help!
Posted by 2roads (Member # 4409) on :
I would go to the one who diagnosed the girls in New York.
Cannot remember the name, maybe someone will-
Posted by Keebler (Member # 12673) on :
- Did you look at their main web sites? Just Google PANDAS and you should see a main web site or two for an organization.
I'd also contact the LLMD in the northern suburb of Minneapolis. She's been a presenter at the last few ILADS conferences. Surely her office will know.
The Minnesota Lyme group will know how to find her. Just Google for their website. -
Posted by Tracy9 (Member # 7521) on :
There is a very good one in Darien, CT...can we mention those docs names on here, just not Lyme docs names? The one who discovered PANDAS is at Johns Hopkins I believe; Merrygirl would know because her son was just seen by her.
The top pediatric Lyme doc refers a lot of PANDAS kids to this doc in Darien, CT. If you google immunologists he has offices in both Darien and Stamford and has a very Greek name.
Posted by hopingandpraying (Member # 9256) on :
PM Sent.
Posted by merrygirl (Member # 12041) on :
Pandas resource network.
The nih is currently.taking "new" like under 1 year cases of pandas for an amazing study.
Your child does not need to be diagnosed yet. They can do it.
It doesnt cost anything.
The network should list the study, support groups and help with drs. Pm me for more info
Posted by merrygirl (Member # 12041) on :
Oh sorry missed the 25Yo part.
The nih has an age range.
Posted by opus2828 (Member # 15407) on :
I second the one in Darien CT. He is one of the best in the country.