LymeNet Flash: PANDAS doctors - where do I find one?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » PANDAS doctors - where do I find one?

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Topic: PANDAS doctors - where do I find one?

pab
Frequent Contributor (1K+ posts)
Member # 904

posted

We live in the Minneapolis/St Paul area, but we will travel to see one. My son is 25.

Please help!

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Peggy

~ ~ Hope is a powerful medicine. ~ ~

Posts: 2775 | From MN | Registered: Apr 2001 | IP: Logged |

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

I would go to the one who diagnosed the girls in New York.

Cannot remember the name, maybe someone will-

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Did you look at their main web sites? Just Google PANDAS and you should see a main web site or two for an organization.

I'd also contact the LLMD in the northern suburb of Minneapolis. She's been a presenter at the last few ILADS conferences. Surely her office will know.

The Minnesota Lyme group will know how to find her. Just Google for their website.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

posted

There is a very good one in Darien, CT...can we mention those docs names on here, just not Lyme docs names? The one who discovered PANDAS is at Johns Hopkins I believe; Merrygirl would know because her son was just seen by her.

The top pediatric Lyme doc refers a lot of PANDAS kids to this doc in Darien, CT. If you google immunologists he has offices in both Darien and Stamford and has a very Greek name.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

PM Sent.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

merrygirl
Frequent Contributor (1K+ posts)
Member # 12041

posted

Pandas resource network.

The nih is currently.taking "new" like under 1 year cases of pandas for an amazing study.

Your child does not need to be diagnosed yet. They can do it.

It doesnt cost anything.

The network should list the study, support groups and help with drs. Pm me for more info

Posts: 3905 | From USA | Registered: May 2007 | IP: Logged |

merrygirl
Frequent Contributor (1K+ posts)
Member # 12041

posted

Oh sorry missed the 25Yo part.

The nih has an age range.

Posts: 3905 | From USA | Registered: May 2007 | IP: Logged |

opus2828
LymeNet Contributor
Member # 15407

posted

I second the one in Darien CT. He is one of the best in the country.

Posts: 581 | From CT | Registered: May 2008 | IP: Logged |

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