LymeNet Flash: Vitamin D

This is topic Vitamin D in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/116746

Posted by YinYang (Member # 36358) on :

Hi All,

My GP has recommended that I take some very high dosage vitamin D supplements because I'm extremely deficient (maybe because Inews nside all Last summer on doxy). I'm in between LLMD's right now. My last Lyme doctor said he does not want to address Low vitamin D levels because it causes complications for Lyme patients. Can anyone provide me some insight?

Thanks!

Posted by nonna05 (Member # 33557) on :

That's a big debate...Our regular blood levels of D can be low..Then it's possible for something ,I think< called Hydroxy D to be high.

Marshall protocol talks about , needing to be low a doctor in Colo. agrees that your second level test has to be in range because is not safe.

My D3 was way below 30 , but the other was 2 points above range on the other.

Many don't agree and still say we need the D3,. NOT the Script one if it is D 2.

Confussing. Not sure if OK to say the M protocol or not [Eek!]

I know sometimes I fell a certain pain in my bones and I add extra...I was doing 10,000 units a day last Summer and that's when I still got out a bit..

My RA did the scriptfor D once a week 25,000 units.

That was a while ago.

Can get Carolson drops with 2000 units in each drop of D3.

First told to take it after diagnoses and then he said to stop recently. Even with numbers not much above 30.

Posted by LaurenMiddleTN (Member # 35174) on :

Not sure whether it's good or not too. However mine was so low that my Dr., has me on 50,000 units a week - for 6 months. [confused]

Posted by jarjar (Member # 8847) on :

I am 100% with your doctor. I just get D from my food and sunshine. Many lyme patients Vita D 1.25 is elevated while regulars D levels are low.

Taking extra D just makes me fatigued. But other have different responses.

Posted by baileypup (Member # 22824) on :

There is controversy about Vitamin D3. For me Vitamin D3 has been a HUGE part of my improvement. I take 50,000 IU's at least once a week, and sometimes more often.

This is what I'd recommend. Try taking a high dose of Vitamin D3, and see if you feel better. It is important to be in touch with how it affects you.