LymeNet Flash: Vitamin D

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Vitamin D

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Author

Topic: Vitamin D

YinYang
LymeNet Contributor
Member # 36358

posted

Hi All,

My GP has recommended that I take some very high dosage vitamin D supplements because I'm extremely deficient (maybe because Inews nside all Last summer on doxy). I'm in between LLMD's right now. My last Lyme doctor said he does not want to address Low vitamin D levels because it causes complications for Lyme patients. Can anyone provide me some insight?

Thanks!

Posts: 274 | From United States | Registered: Feb 2012 | IP: Logged |

nonna05
Frequent Contributor (1K+ posts)
Member # 33557

posted

That's a big debate...Our regular blood levels of D can be low..Then it's possible for something ,I think< called Hydroxy D to be high.

Marshall protocol talks about , needing to be low a doctor in Colo. agrees that your second level test has to be in range because is not safe.

My D3 was way below 30 , but the other was 2 points above range on the other.

Many don't agree and still say we need the D3,. NOT the Script one if it is D 2.

Confussing. Not sure if OK to say the M protocol or not [Eek!]

I know sometimes I fell a certain pain in my bones and I add extra...I was doing 10,000 units a day last Summer and that's when I still got out a bit..

My RA did the scriptfor D once a week 25,000 units.

That was a while ago.

Can get Carolson drops with 2000 units in each drop of D3.

First told to take it after diagnoses and then he said to stop recently. Even with numbers not much above 30.

Posts: 2563 | From Denver,CO | Registered: Aug 2011 | IP: Logged |

LaurenMiddleTN
Member
Member # 35174

posted

Not sure whether it's good or not too. However mine was so low that my Dr., has me on 50,000 units a week - for 6 months. [confused]

--------------------
Bite: 5/08, Bulls-eye rash; test:neg. Doxy Treated.
Relapse 5/09: test: neg. Doxy Treated.
Relapse 6/10: back2bake test-neg: Request Western Blot: POSITIVE Currently - 4th round of treatment.
"Sharing my Experience, Strength and Hope."

Posts: 35 | From Middle TN | Registered: Nov 2011 | IP: Logged |

jarjar
LymeNet Contributor
Member # 8847

posted

I am 100% with your doctor. I just get D from my food and sunshine. Many lyme patients Vita D 1.25 is elevated while regulars D levels are low.

Taking extra D just makes me fatigued. But other have different responses.

Posts: 805 | From Utopia | Registered: Feb 2006 | IP: Logged |

baileypup
LymeNet Contributor
Member # 22824

posted

There is controversy about Vitamin D3. For me Vitamin D3 has been a HUGE part of my improvement. I take 50,000 IU's at least once a week, and sometimes more often.

This is what I'd recommend. Try taking a high dose of Vitamin D3, and see if you feel better. It is important to be in touch with how it affects you.

Posts: 964 | From san diego | Registered: Oct 2009 | IP: Logged |

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