I've been diagnosed with atypical ALS and lyme. Many antibiotics later, I'm still getting weaker. Has anyone tried IVIG for ALS?
Posted by susank (Member # 22150) on :
I don't know about IVIG and ALS.
I did ask you in another thread if you had had your Immunoglobulin levels checked. Have you?
I was discovered to be IGG deficient which is why I receive IVIG. I just had an infusion today.
Have you been approved for IVIG?
Posted by Mathias (Member # 5298) on :
Have you been tested for mycoplasma fermentans?
Mycoplasma is a lyme mimic and can produce ALS type symptoms when the nervous system is affected.
Posted by canefan17 (Member # 22149) on :
I have ALS symptoms as well. Pretty severe at this point as I'm losing more weight/muscle and becoming weaker.
Bartonella is my culprit without a doubt. There may be other issues (metals, borrelia, myco) but Bart is the cause behind my ALS symptoms.
For the record it's the left side of my body deteriorating and I'm starting Abxs soon.