LymeNet Flash: anyone try IVIG for ALS symptoms?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » anyone try IVIG for ALS symptoms?

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Topic: anyone try IVIG for ALS symptoms?

2young2dieMom
LymeNet Contributor
Member # 25434

posted

I've been diagnosed with atypical ALS and lyme. Many antibiotics later, I'm still getting weaker. Has anyone tried IVIG for ALS?

--------------------
Dxd ALS 3/2010
Dxd cllinical Lyme 4/2010
Positive for Protomyxzoa but absolutely nothing else in Igenex

Posts: 417 | From central ct | Registered: Apr 2010 | IP: Logged |

susank
Frequent Contributor (1K+ posts)
Member # 22150

posted

I don't know about IVIG and ALS.

I did ask you in another thread if you had had your Immunoglobulin levels checked. Have you?

I was discovered to be IGG deficient which is why I receive IVIG. I just had an infusion today.

Have you been approved for IVIG?

--------------------
Pos.Bb culture 2012
Labcorp - no bands ever
Igenex - Neg. 4 times
With overall bands:
IGM 18,28,41,66 IND: 23-25,34,39
IGG 41,58 IND: 39
Bart H IGG 40

Posts: 1613 | From Texas | Registered: Aug 2009 | IP: Logged |

Mathias
Frequent Contributor (1K+ posts)
Member # 5298

posted

Have you been tested for mycoplasma fermentans?

Mycoplasma is a lyme mimic and can produce ALS type symptoms when the nervous system is affected.

--------------------
Mathias

Posts: 1250 | From New Jersey | Registered: Feb 2004 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

I have ALS symptoms as well. Pretty severe at this point as I'm losing more weight/muscle and becoming weaker.

Bartonella is my culprit without a doubt. There may be other issues (metals, borrelia, myco) but Bart is the cause behind my ALS symptoms.

For the record it's the left side of my body deteriorating and I'm starting Abxs soon.

Ceftin, Mycobutin, Minocycline (possibly)

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

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