Hi, I am wondering if any of you out there are doing IVIGG treatment and how it's working for you.
I have been doing the treatment for 2 years in July and went from being on disability and on rocephin (with central line) to working full time, plus working out, and semi-social.
I really feel it helps me so much, but I am worried that my insurance will cut me off. My last two bills were flagged for additional review. Anyway maybe there is something else I could do that would help me maintain (which is basically what ivigg does) and I continue to take oral meds.
Thanks,
Posted by Michael_Venice (Member # 17254) on :
May I ask what the reason was for giving you IVIG? Did you have low immune subclasses or an immune deficiency diagnosis?
Before I was diagnosed with lyme, a rheumatologist thought I had an immune deficiency syndrome (I had low subclasses). I did one round of IVIG--despite letters from the doctor, my insurance at the time would not cover it at all. So I paid out of pocket for one treatment. It didn't seem to improve anything at all, and the doctor changed his mind about my diagnosis. I never got a good understanding of whether I should have even expected anything from only one treatment.
then, a few weeks later, lyme and babesia came up positive, and I ended up in the lyme world.