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» LymeNet Flash » Questions and Discussion » Medical Questions » IVIGG

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Author Topic: IVIGG
Lindsay
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Member # 7910

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Hi, I am wondering if any of you out there are doing IVIGG treatment and how it's working for you.

I have been doing the treatment for 2 years in July and went from being on disability and on rocephin (with central line) to working full time, plus working out, and semi-social.

I really feel it helps me so much, but I am worried that my insurance will cut me off. My last two bills were flagged for additional review. Anyway maybe there is something else I could do that would help me maintain (which is basically what ivigg does) and I continue to take oral meds.

Thanks,
Posts: 19 | From Northern California | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
Michael_Venice
LymeNet Contributor
Member # 17254

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May I ask what the reason was for giving you IVIG? Did you have low immune subclasses or an immune deficiency diagnosis?

Before I was diagnosed with lyme, a rheumatologist thought I had an immune deficiency syndrome (I had low subclasses). I did one round of IVIG--despite letters from the doctor, my insurance at the time would not cover it at all. So I paid out of pocket for one treatment. It didn't seem to improve anything at all, and the doctor changed his mind about my diagnosis. I never got a good understanding of whether I should have even expected anything from only one treatment.

then, a few weeks later, lyme and babesia came up positive, and I ended up in the lyme world.
Posts: 322 | From Venice, CA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
   

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