I feel like I am so clumsy and have probs with fine motor control in my hands and as if I just can't make my body parts fire right or do what I want smoothly or with proper coordination.
Has anyone had this and what infection causes it?
It is really scarry cause I feel like I am losing control of my body movements
Can anyone relate?
Posted by Maya12 (Member # 36392) on :
Anyone have this?
I still have strength but just feel like my brain and body aren't talking together and feel uncoordinated , or as if my brain just isnt telling my limbs to move correctly or quickly enough especially my hands, as if I was drunk, I constantly fumble
I am scared this is like als?
Has anyone had this?
Posted by Maya12 (Member # 36392) on :
Anyone had this
Posted by Maya12 (Member # 36392) on :
Anyone? Please help with this
Posted by Maya12 (Member # 36392) on :
How come no one is answering, does that mean no one has had this?
Posted by Maya12 (Member # 36392) on :
Is there no one that has had this? It seems to come and go
Posted by Maya12 (Member # 36392) on :
Please guys has anyone had this , I am very scared of what it is? It can also feel like weakness and dizziness
Posted by Maya12 (Member # 36392) on :
It feels mostly like a lack of muscle coordination
Posted by Maya12 (Member # 36392) on :
Has no one seriously had this?
Posted by TF (Member # 14183) on :
Maya, it has only been about 5 hours since you posted this.
Give people more time. Many are not on the board due to the holidays.
I myself do not remember having this symptom, but it was so many years ago now since I had lyme, that I only remember so much about what it was like.
Posted by KentuckyWoman (Member # 38894) on :
Maya, I think many of us have had this problem. I have. It is just another symtom to add to what I call "the boatload" of symptoms that come with lyme.
I do not know which 'version' of lyme it is or if it caused by a coinfection, bc I am still in the process of sorting those out myself as to what I have.
I've had them from the very beginning, starting almost 2 yrs ago. The first one or two are scary bc you don't know what they are.
After that, you figure out how to cope with them.
Then, you pray you find out what is causing it. . . oh wait, you already know.. IT's LYME!!! I can't really say you are "lucky" to know why, but it is slightly worse when you don't know why.
If you are able to read posts by others on here, you will be able to 'arm yourself' with alot of knowledge as to all the possibilities of sxs lyme may or may not bring to your body.
I say "IF" you are able, bc many of us cannot read much for any length of time bc our eyes do not work properly or our brain cannot process information in huge chunks.
Now I do not wish to sound discouraging. Knowing the face of the enemy is a HUGE deal. If you have proof you have lyme, then your are ARMED for battle.
I hope you have a great LLMD to fight with you. KW
Posted by KentuckyWoman (Member # 38894) on :
Lyme is called "The Great Imitator" bc its symptoms mimic Fibro, MS, Lou Gherighs, Alzh, Dementia, Stroke, Bells Palsy, Chrones and many others.
Posted by Maya12 (Member # 36392) on :
Hey Kentucky woman thank you so much for telling me this, I really appreciate it
Posted by KentuckyWoman (Member # 38894) on :
You're welcome.
Posted by hopeful4 (Member # 8486) on :
I agree with KentuckyWoman, that Lyme can be mimicing any of the illnesses she has listed.
Before starting treatment I was still able to walk about a mile or so. When treatment started my legs became very weak, and I was barely able to walk around my small house. It was very scary, I thought I might die or be permanently unable to walk.
But, thank G-d, gradually, with treatment, I became able to walk normally again, and even exercise.
I'm hoping that you are getting the treatment and care that you need to help you through this.
Best wishes.
Posted by feelfit (Member # 12770) on :
i have this. all of the time. as KY woman has expressed- when nothing permanent happens, you learn to cope with it.
having an especially bad period myself right now. hang in there Maya, it will leave as suddenly as it has come on.
Posted by Dove7 (Member # 39546) on :
Yes, I have it. Can hardly hold a pen to write right now.
Coordination poor, too. I have reluctantly resorted to using a cane much of the time to avoid stumbling or falling; with early onset osteoporosis, I don't need that.
Tremors and twitches often cause me to drop things.
My LLMD says that Lyme and/or confections can cause these neuro-like symptoms.
Repeating what others have said, Lyme can imitate many, many other things. That's why my LLMD insisted that I go see me neuro to rule out other things. Plus, my LLMD said that while Lyme can imitate, other diseases and syndromes also exist and need to be ruled out or dealt with too.
I hope the words of those who care about me give you a little comfort. "Don't be so hard on yourself. You're you, not the illness. We love you, with and/or without this."
Posted by Raquel (Member # 39644) on :
I definitely have problems with coordination and fine motor control. It's very frustrating, because I've always been fairly clever with my hands; I'm used to using them, and using them capably. Lately, however, it takes a lot of concentration to manage the clasp of a necklace, and I drop everything.
I'm also very unsteady on my legs, and tend to be generally stiff and clumsy, to the amusement of my coworkers, who don't all know I'm sick.
Another weird motor problem I have is with my jaw. I can't speak as clearly as I used to. My jaw seems stiff and clumsy, and I can't form sounds precisely. It's very strange. And the more tired I am, the more I sound a lil' bit drunk.
I'm also very shaky, and have frequent tremors, especially in my neck and arms and hands.
I have Lyme and babesia.
I've recently begun doing some short, light yoga practice in the mornings, which helps some with the overall stiffness, weakness, and clumsiness, but I have yet to find anything that helps my hands or my jaw.
Posted by Dove7 (Member # 39546) on :
Raquel, I did get some compression gloves that are fingertip -less. They are designed for Reynaud and arthritis. I find them to help, not cure, but help. Got them on eBay for about one third of what they would cost in a store.
Posted by Raquel (Member # 39644) on :
Thanks, Dove7! I'll definitely look for those.
...Found some gray ones that are not too medical-looking. I like fingerless gloves anyway. Hmm...
Posted by sillia (Member # 23994) on :
Loss of coordination has been one of my major symptoms. It has gotten much better with abx treatment--now it comes back only during a herx. In fact, one way I can tell that I'm starting a herx is if I drop something. Once I was starting to write a check and suddenly couldn't write--I thought, I'll bet that's a herx coming and sure enough the next day I had a bad herx.
I hope you are getting good treatment with an LLMD. It takes time and persistence, but people do recover.
Posted by sillia (Member # 23994) on :
One thing that's helped my hand coordination, along with my abx treatment, is crochet! I started this about a year and a half ago and I think it's excellent therapy. It helps me to focus, calm down, it's repetitive and soothing. You don't have to work on anything difficult or fancy--I started with dishcloths and have done more advanced things little by little as I'm feeling better.
Knitting or quilting work would also be good--whatever you enjoy, something low-stress that keeps your hands moving.
Posted by daynise (Member # 39609) on :
Hi Maya,
I drop things a lot or can't grip them- and sometimes things just fly out of my hands like I've thrown them-
Seems like it's always glass when that happens!
I trip, bump into everything, and am so clumsy. I'm covered in bruises I don't remember earning.
I used to think it was just because of arthritis but now I believe it's neurological too.
From what I've seen online, LOTS of people with Lyme have these symptoms.
![[dizzy]](graemlins/dizzy.gif)