I started tindamax at half dose last week at three days on, four days off. I got really sick and even though I've been off for three days now, I'm still feeling just as sick. I've been doing lots of detox too. Can anyone out there tell me if they had the same experience even after being off for several days? I'm supposed to start my next three tomorrow night. I thought I'd get a little break from feeling so sick before starting again. I was feeling so much better before starting the tindamax. Not "better" but functioning I should say. Thanks.
Posted by jessicabooklover (Member # 39427) on :
Hi there-I am on tindamax right now too and holy moses it is ROUGH on me, too. Even the days that I have been off it, I am still feeling TERRIBLY ill. I hope things improve for both of us soon. Jess.
Posted by sickmate (Member # 31502) on :
I also got new symptoms from this med. I dont know why, but it was no herx because those symptoms stayed for a long time (and some are still there).
Posted by lymeboy (Member # 24769) on :
Tindamax is as good as it gets for busting cyst form borrelia. It is also said to have good activity against Bartonella as well, though I cannot remember where I read that.
I started with Tindamax by pulsing 2 weeks on, 1 week off. I had some very strong reactions with the first few months of pulsing. And yes, I stayed herxing when I was off of it. But over time, the herxes dwindled and became very manageable. I think my biggest problem currently are the coinfections. I do believe that Tindamax has helped to cripple the Lyme, though I can never be sure. I highly recommend it.
Posted by Annelet (Member # 13503) on :
Tinidazole is also a Cyst buster for the cystic form of Chlamydia Pneumonia, so if you have that on board as well as Lyme, you will get a double whammy.
Posted by lostlyme (Member # 38561) on :
do you take any antifungals , and also any binders to bind the toxins in the intestines to prevent them from being reabsorbed. Also it is important to keep a journal on what meds you are taking and the severity of symptoms , this way it is much easier for you or your llmd to find a pattern and at same time no second guessing .
Posted by jlf2012 (Member # 36002) on :
I take anti fungal herbs but no binders. What would you recommend? I keep a journal but things seem to be so sporadic, it's hard to see a pattern. After being off the tindamax for five days I finally got a little relief yesterday. I start it again tonight though.
Posted by jlf2012 (Member # 36002) on :
I see lymeboy takes it two weeks on one week off. Could the rest of you tell me how your doctor has you taking it? Since having such a rough time, my doc said to do two days on a week for now. Then I guess I'll build up, but not sure.
Posted by lostlyme (Member # 38561) on :
these are very good to remove toxins out of body Burbur , parlsey ,pinella available from http://www.nutramedix.com/ ,Currently now doing 500mg twice a day for 4 days on 3 off with the tindermax .i also take other medications . My LLMD had me start out 250mg for 3 days on 4 off ,then ramped up over time . i have been doing his protocol for 9 months now and very pleased. His protocol has brought my lyme count way down and also my bartonella .
Posted by Ellen101 (Member # 35432) on :
I will be starting tindamax soon. My LLNP wants me to do 2 Days a week,back to back days. She said I may be only abletotolerate once a week at first.
Posted by YinYang (Member # 36358) on :
Same exact experience here. I could have written your post. I'm taking 2 pills 2 days in a row per week and I'm knocked down. I was feeling better before starting it, too. I guess we could be thankful that we are tackling the cyst form. I got a taste of what 'normal' could be, though and I miss it already! Just when I thought all of this was just a terrible nightmare!
Posted by t9im (Member # 25489) on :
Hi jlf2012:
Our daugher was on Tindamax for just over 6 months (in what ended up being a 2 year treatment protocol). Her LLMD had her pulse 2 consective days out of every 7.
It was very rough on her as well. She had to take some over the counter medications to alleviate some of the alergic effects. This was mostly itching and hives which still persisted for 6 to 8 weeks after we took her off it.
She also had significant hair loss.
We finally had to stop this medication when anexoria set in and it reached a point where we had to stop as she was starving herself.
The appetite took around 6 weeks to be back fully.
Why did we allow this for so long. In effect this was like a cancer medication doing bad as well as good. Hard for a parent or patient to analyze the cost benefit.
Well Lymeboy is correct, Dr. S. has done research showing the significant reduction in cyst and spirochete form of borrelia from tindamax. This was in the test tube not human testing.
We attribute this medication to bringing her back from the neuro symptoms. This was easy to determine.
She started with Zith and Mepron for 4 months (which helped with the Babesia) and the neuro symptoms continued to worsen. May - Sept.
Mid Sept. (Month 5) started the tindamax. Didn't start to see results till January (month 9) when she started to pick up a book again.
January - March was when we were seeing positive results from cognitive standpoint. Unfortunately it was in this period that her appetite disappeared.
Early April we stopped the medication (full 6 months on tindamax).
She continued on mepron and zithromax for over another year.
Good luck.
Posted by jlf2012 (Member # 36002) on :
Thank you everyone. Is your daughter better now Tim? Yinyang, I am with you...it's a living nightmare. Thinking of you all!
Posted by t9im (Member # 25489) on :
Hi jlf2012:
Here is the link referencing Dr. S's work indicating the tindamax effectiveness against the spirochete and cyst forms.
Thank you for asking. She has been off meds since June. She is better and may be over lyme but we / she has other issues to deal with.
Her immune system is not what it used to be and she still fatigues easily. This fatigue is not like the fatigue she had with the babesia and lyme but still something.