i just read dx heavy metals is part of how western medical docs dx als
anyone know anything about this?
im trying to figure out limb weakness that comes and goes -im 30 yrs into lyme and this is the worst this has ever gotten and it is lasting way longer...been getting worse for 3-4 months now
i know there is a group with lyme who get als...just wondering if the metals were an issue for you
also...als is known to be fatal...and most die 3-5 yrs after dx...but 10% live 10-20 yrs and like lyme there really is no test for it...it is a clinical dx
so if they give respect to als...why not lyme???
so confusing. probably goes back to money somehow
Posted by lpkayak (Member # 5230) on :
up???
Posted by MichaelTampa (Member # 24868) on :
Hadn't heard that, but I see the connection that some/many ALS people are very EMF sensitive, and heavy metals is thought to be the reason for EMF sensitivity (whether one has ALS or not).
Posted by Catgirl (Member # 31149) on :
Ip, I suspect most people here would agree with you (money).
I am just speculating here (don't know enough about it), but I wonder if babs untreated could have something to do with ALS? Or maybe it's the combo of babs and heavy metals? If lyme goes untreated it can lead to autoimmune, which is what makes me think babs.
Posted by lyme-o (Member # 35115) on :
lpkayak, in all my heart I believe there is a connection between lyme and ALS. And yes, hubby did test positive for heavy metals. His lyme doc said that anyone with lyme will test positive for heavy metals. After 2 years of treating for lyme disease, hubby was diagnosed with motor neuron disease, ALS overlap. His treatment of lyme started with a quack lyme doc and we feel that started the motor neuron issues. We are leaving for India in the next week where he will have enbryonic stem cell therapy. There are no guarantees however. But I feel that if the doc can get rid of all the lyme, that will make a huge difference. If you'd like to message me privately, please do.
Posted by Catgirl (Member # 31149) on :
Hang in there Ipkayak and Lyme-o.
Posted by TF (Member # 14183) on :
My lyme doctor told me that anyone with ALS who lives more than 3-5 years doesn't really have ALS. They actually have lyme disease.
He said that people don't live very long if it is really ALS.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Catgirl: Hang in there Ipkayak and Lyme-o.
- Amen!!
Posted by GiGi (Member # 259) on :
I don't think there is any chronic ailment that does not include heavy metal toxicity as one of the major problems.
I heard Dr. K. say recently that people with ALS symptoms/diagnosis do well with MMS. He did not elaborate much, so suggest you explore my more recent posts on the subject of MMS, parasites, etc.
I don't have ALS and I don't have Life Lyme, but am doing heavy metal detox and some forms of MMS.
All the best.
Posted by lyme-o (Member # 35115) on :
interesting TF
Posted by Lymetoo (Member # 743) on :
He's probably right, TF.
Posted by lpkayak (Member # 5230) on :
thank you all for support and info...
lymeo i will pm you
gigi - thx...i have been following your recent posts
i once tested hig in copper and it was found to be in the well water...and corrected
i have been tested by llmd a few times and not shown high in metals
i have one root canal and all my amalgams removed...(not too many) and now dont have metal in me...except my knees...not sure what they are made of...hmmmm.
im a bit overwhelmed by new sx and new protocols but will specifically look into mms...
thank you all again.
tf-i thought that as soon as i read it...it was on the als site tho...so even they are admitting it is not always fatal...someday maybe they will admit it is not what thay say it is...who knows...