lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i just read dx heavy metals is part of how western medical docs dx als
anyone know anything about this?
im trying to figure out limb weakness that comes and goes -im 30 yrs into lyme and this is the worst this has ever gotten and it is lasting way longer...been getting worse for 3-4 months now
i know there is a group with lyme who get als...just wondering if the metals were an issue for you
also...als is known to be fatal...and most die 3-5 yrs after dx...but 10% live 10-20 yrs and like lyme there really is no test for it...it is a clinical dx
so if they give respect to als...why not lyme???
so confusing. probably goes back to money somehow
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
up???
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Hadn't heard that, but I see the connection that some/many ALS people are very EMF sensitive, and heavy metals is thought to be the reason for EMF sensitivity (whether one has ALS or not).
Posts: 1927 | From se usa | Registered: Mar 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Ip, I suspect most people here would agree with you (money).
I am just speculating here (don't know enough about it), but I wonder if babs untreated could have something to do with ALS? Or maybe it's the combo of babs and heavy metals? If lyme goes untreated it can lead to autoimmune, which is what makes me think babs.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
lpkayak, in all my heart I believe there is a connection between lyme and ALS. And yes, hubby did test positive for heavy metals. His lyme doc said that anyone with lyme will test positive for heavy metals. After 2 years of treating for lyme disease, hubby was diagnosed with motor neuron disease, ALS overlap. His treatment of lyme started with a quack lyme doc and we feel that started the motor neuron issues. We are leaving for India in the next week where he will have enbryonic stem cell therapy. There are no guarantees however. But I feel that if the doc can get rid of all the lyme, that will make a huge difference. If you'd like to message me privately, please do.
Posts: 305 | From United States | Registered: Nov 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Hang in there Ipkayak and Lyme-o.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
My lyme doctor told me that anyone with ALS who lives more than 3-5 years doesn't really have ALS. They actually have lyme disease.
He said that people don't live very long if it is really ALS.
Posts: 9931 | From Maryland | Registered: Dec 2007
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quote:Originally posted by Catgirl: Hang in there Ipkayak and Lyme-o.
- Amen!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
I don't think there is any chronic ailment that does not include heavy metal toxicity as one of the major problems.
I heard Dr. K. say recently that people with ALS symptoms/diagnosis do well with MMS. He did not elaborate much, so suggest you explore my more recent posts on the subject of MMS, parasites, etc.
I don't have ALS and I don't have Life Lyme, but am doing heavy metal detox and some forms of MMS.
All the best.
Posts: 9834 | From Washington State | Registered: Oct 2000
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thank you all for support and info...
lymeo i will pm you
gigi - thx...i have been following your recent posts
i once tested hig in copper and it was found to be in the well water...and corrected
i have been tested by llmd a few times and not shown high in metals
i have one root canal and all my amalgams removed...(not too many) and now dont have metal in me...except my knees...not sure what they are made of...hmmmm.
im a bit overwhelmed by new sx and new protocols but will specifically look into mms...
thank you all again.
tf-i thought that as soon as i read it...it was on the als site tho...so even they are admitting it is not always fatal...someday maybe they will admit it is not what thay say it is...who knows...
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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