I realized yesterday that my diastolic pressure (lower number of the blood pressure) bounces around all over the place.
I'm currently on Florinef and Beta Blockers, which have helped my baseline, but I still get POTS attacks with vomiting; diarrhea; suppressed awareness; dizziness; falling asleep like passing out for an hour, then waking up feeling worn out. Maybe something that would mitigate the erratic blood pressure would help?
Posted by Lymetoo (Member # 743) on :
I was once tested for POTS .. they messed up the test and I never found out if I had it. I was put on a calcium channel blocker about 7 yrs ago.
Might be worth a try!
Posted by canbravelyme (Member # 9785) on :
I just found out via Facebook that CCB's didn't make a difference for someone who also had POTS and erratic BP. (there seem to be a considerable amount of people with POTS and erratic BP...)
I think your suggestion of Mast Cell involvement is spot on -- I am looking into it at present...
Do you happen to know whether Florinef is prescribed to people with HyperPOTS Mast Cell? (please answer on my HyperPOTS Mast Cell thread, for the next person who comes looking...)