LymeNet Flash: Calcium Channel Blockers for POTS?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Calcium Channel Blockers for POTS?

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Topic: Calcium Channel Blockers for POTS?

canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785

posted

Anyone take Calcium Channel Blockers? Here's an article suggesting it's variations in BP that put us more at risk than having consistently high BP -- they are suggesting calcium channel blockers, rather than Beta Blockers, help even out these readings. Here's the article: http://www.dailymail.co.uk/health/article-2266234/High-blood-pressure-New-research-suggests-sawing-readings-key-danger-sign-strokes-.html

I realized yesterday that my diastolic pressure (lower number of the blood pressure) bounces around all over the place.

I'm currently on Florinef and Beta Blockers, which have helped my baseline, but I still get POTS attacks with vomiting; diarrhea; suppressed awareness; dizziness; falling asleep like passing out for an hour, then waking up feeling worn out. Maybe something that would mitigate the erratic blood pressure would help?

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For medical advice related to Lyme disease, please see an ILADS physician.

Posts: 1494 | From Getting there... | Registered: Aug 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I was once tested for POTS .. they messed up the test and I never found out if I had it. I was put on a calcium channel blocker about 7 yrs ago.

Might be worth a try!

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785

posted

I just found out via Facebook that CCB's didn't make a difference for someone who also had POTS and erratic BP. (there seem to be a considerable amount of people with POTS and erratic BP...)

I think your suggestion of Mast Cell involvement is spot on -- I am looking into it at present...

Do you happen to know whether Florinef is prescribed to people with HyperPOTS Mast Cell? (please answer on my HyperPOTS Mast Cell thread, for the next person who comes looking...)

Best,

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

Posts: 1494 | From Getting there... | Registered: Aug 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Reply here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/128855?#000001

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

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