One of my symptoms I have not yet been able to have explained to me persists and is very concerning for those around me when it happens.
It used to hit me if I was walking, now that I can't walk far at all, it hits me just sitting.
I can start out walking next to someone, then I slow to the point where I am 20 steps behind, and then come to a point where I start going sideways, and I need assistance.
I need to be guided/dragged carried to a seat. I can't speak more than a mumble of a yes or no, sounds are multiplied, people walking toward me look like tunnel vision in a carnival. I stay slumped over, trapped in my own body for about an hour or so until it passes.
Now it happens sitting in a chair, all of a sudden I get quieter and quieter, and by the time I tell my husband it's time to go, it's too late. I need to be lifted up out of the chair, and need to be carried out.
Do any of you have this happen? The only thing I could find that was close to this was on the Under our skin documentary when Mandy was talking about swimming, and that if she swam a lap she would have to be dragged out like the catch of the day.
Posted by Jessiep (Member # 35399) on :
I have something similar happen. My muscles just stop working. I have to sit immediately whereever I am. Comes on suddenly and then within 20 min it passes. It's so damn scary. My heart also races but that could be because it freaks me out and I panic. Hang in there.
Posted by jennyfromtheblock (Member # 43805) on :
jessiep,
yes! It's like walking through mud. Or I have tried to tell the drs it's like I am a wind up toy that winds down.
They once put me on antiseizure meds, b/c they questioned if it was a seizure...it made those symptoms come fast and furious with no relief.
It used to make me panic, you could see the fear in my eyes. But I guess now, I have accepted that it is here for now?
I also have been told my face goes grey and my eyes will roll back.
Posted by Kbone (Member # 43682) on :
I agree hang in there. This is one of my symptoms that has greatly improved, I had really heavy legs and it felt like I was going to go down when walking. There's still hope for you
I feel like with these diseases things come and go, its something I have accepted.
My newest symptom is chest flutters - and I only get them at night when I lie down. It's scary. I think it might be from acid reflux though. Had my heart checked at the ER when this all started happening not that long ago.
Posted by Judie (Member # 38323) on :
Before Lyme, what triggered it for me was toxic exposure which included car exhaust, fragranced items, cleaning products, new construction and anything with VOCs.
"This involves a brain response in which the person has seizures or seizure-like activity following exposure to chemicals. It has also been demonstrated that individuals who have toxic exposure can have reduced blood supply to the brain. When this is present, the individuals may have chronic difficulty with thinking, memory, concentrating, and other brain functions."
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Hang in there.
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