LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » strange symptom, almost like altered state/crash? Any thoughts?

 - UBBFriend: Email this page to someone!    
Author Topic: strange symptom, almost like altered state/crash? Any thoughts?
jennyfromtheblock
Member
Member # 43805

Icon 1 posted      Profile for jennyfromtheblock     Send New Private Message       Edit/Delete Post   Reply With Quote 
One of my symptoms I have not yet been able to have explained to me persists and is very concerning for those around me when it happens.

It used to hit me if I was walking, now that I can't walk far at all, it hits me just sitting.

I can start out walking next to someone, then I slow to the point where I am 20 steps behind, and then come to a point where I start going sideways, and I need assistance.

I need to be guided/dragged carried to a seat. I can't speak more than a mumble of a yes or no, sounds are multiplied, people walking toward me look like tunnel vision in a carnival. I stay slumped over, trapped in my own body for about an hour or so until it passes.

Now it happens sitting in a chair, all of a sudden I get quieter and quieter, and by the time I tell my husband it's time to go, it's too late. I need to be lifted up out of the chair, and need to be carried out.

Do any of you have this happen? The only thing I could find that was close to this was on the Under our skin documentary when Mandy was talking about swimming, and that if she swam a lap she would have to be dragged out like the catch of the day.

--------------------
celiac dx 2012
pancreatic neuroendocrine tumor dx 2012
lyme dx 2/14
poss igm wb, neg igg wb - Igenex/CDC

Posts: 85 | From south shore | Registered: May 2014  |  IP: Logged | Report this post to a Moderator
Jessiep
LymeNet Contributor
Member # 35399

Icon 1 posted      Profile for Jessiep     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have something similar happen. My muscles just stop working. I have to sit immediately whereever I am. Comes on suddenly and then within 20 min it passes. It's so damn scary. My heart also races but that could be because it freaks me out and I panic. [Frown] Hang in there.
Posts: 342 | From Philadelphia | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
jennyfromtheblock
Member
Member # 43805

Icon 1 posted      Profile for jennyfromtheblock     Send New Private Message       Edit/Delete Post   Reply With Quote 
jessiep,

yes! It's like walking through mud. Or I have tried to tell the drs it's like I am a wind up toy that winds down.

They once put me on antiseizure meds, b/c they questioned if it was a seizure...it made those symptoms come fast and furious with no relief.

It used to make me panic, you could see the fear in my eyes. But I guess now, I have accepted that it is here for now?

I also have been told my face goes grey and my eyes will roll back.

--------------------
celiac dx 2012
pancreatic neuroendocrine tumor dx 2012
lyme dx 2/14
poss igm wb, neg igg wb - Igenex/CDC

Posts: 85 | From south shore | Registered: May 2014  |  IP: Logged | Report this post to a Moderator
Kbone
Member
Member # 43682

Icon 1 posted      Profile for Kbone     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree hang in there. This is one of my symptoms that has greatly improved, I had really heavy legs and it felt like I was going to go down when walking. There's still hope for you [Smile]

I feel like with these diseases things come and go, its something I have accepted.

My newest symptom is chest flutters - and I only get them at night when I lie down. It's scary. I think it might be from acid reflux though. Had my heart checked at the ER when this all started happening not that long ago.

--------------------
Diagnosed with Lyme 4/7/14

KB

Posts: 87 | From Townsend, MA | Registered: May 2014  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Before Lyme, what triggered it for me was toxic exposure which included car exhaust, fragranced items, cleaning products, new construction and anything with VOCs.

All this got worse with Lyme.

Here's a list of VOCs
http://www.health.state.mn.us/divs/eh/indoorair/voc/

Here's a paper on allergies and chemical reactions:
http://www.mcsbeaconofhope.com/drziemalrg.html

"This involves a brain response in which the person has seizures or seizure-like activity following exposure to chemicals. It has also been demonstrated that individuals who have toxic exposure can have reduced blood supply to the brain. When this is present, the individuals may have chronic difficulty with thinking, memory, concentrating, and other brain functions."

Here's another paper on the topic:

http://www.anapsid.org/cnd/mcs/bastienmcs.html

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.