Okay gang, you want to change things, sign here. Please get involved. It takes 2 seconds. I know everyone feels like crap, but if you don't get involved nothing will change.
Posted by Abxnomore (Member # 18936) on :
At the very least acknowledge that you have read this. Feedback would be nice. It often feels like efforts to inform fall on deaf ears.
We won't get anywhere if we are not all in this together.
Done!! That literally took less than three minutes.
Posted by Tincup (Member # 5829) on :
I read it!
Posted by droid1226 (Member # 34930) on :
Please sign it people. It honestly takes 20 seconds.
If you don't think petitions can beat out big money lobbyists, please read a little about SOPA.
We cannot complain about being walked all over when we skip right by these. One of the Olsen twins has it now.Celebrity after celebrity are coming out sick....one of these petitions goes viral and BOOM, they'll stop going after Dr's like Dr J in Maryland & maybe even designate some funding for it.
It's only so long they can ignore the fastest growing ID in the world right now.....These petitions are crucial.
Posted by Catgirl (Member # 31149) on :
Right on!
Come on friends, please participate or nothing will change.
Posted by Catgirl (Member # 31149) on :
Be sure to copy to your facebook (great way to spread the word and get more signatures)!
Posted by lymeboy (Member # 24769) on :
good god, 416? Come on we can do better than that!
Posted by Catgirl (Member # 31149) on :
I know (pitiful). People should not be so fearful of this. Send out a broadcast email, cut and paste it, and ask friends and family members to sign it.
Come on gang, if you don't do this it won't work. No one is going to do it for us if people don't bother to get involved. Don't hope it gets done, just participate.
Those with HIV would have died off if they didn't stand up and fight back in the 80s. Please join in or nothing will change.
Posted by lymeboy (Member # 24769) on :
Yes Catgirl. Our lives might suck but we aren't dead. No one's gonna fight for us. This is 100% up to us. We'll keep losing and keep fighting and eventually win. This is how it works.
Posted by sebreg (Member # 44928) on :
Regardless of how many signatures we can get, what counts is that we are trying to make our voices heard. What we want is better science, more research, better dx to confirm or rule out these diseases, and better treatments. I'm confident these things will happen, I just hope they happen sooner rather than later. Lord knows too many have suffered enough without being given options or being disrespected by medical community and I think that's the ultimate travesty, the tunnel vision, lack of compassion, lack of open-mindedness, and sometimes shockingly uninformed biases of some professionals. And this isn't to say that we as patients are perfect and have all the answers and are correct in everything. But we are suffering, and want more info, and hopefully we can get more science and research that can help us with these complicated diseases.
Posted by lymeboy (Member # 24769) on :
There must be some celebrity lyme sufferers with large twitter followings that could at least get us a few thousand. It'd be good to have SOME impact here.
Posted by lymeboy (Member # 24769) on :
2 weeks left, not even 500 signatures. Oh well try again...
Posted by droid1226 (Member # 34930) on :
I don't understand. In 2012 when the IDSA asked what they could do better their "New Year's Resolution", they got SWAMPED with thousands of angry people on Facebook. They couldn't even keep up with deleting them. I saved almost all of them on my cpu. Those were real people willing to speak out on their Facebook page. That takes courage. These are anonymous petitions & we can't muster 500.
The good thing is that we know the people are out there and willing to speak up.
Posted by Catgirl (Member # 31149) on :
bump
Posted by Razzle (Member # 30398) on :
I signed it. But don't have anyone to publicize it to. The two other Lyme support groups I'm on do not allow me to post petitions.
My Family doesn't want to be bothered with the extra step of email confirmation.
I don't have any friends who aren't members here.
I don't have an account with twitter, facebook or anything else like that.
So, who do I send this to? I'm at a loss...
Posted by droid1226 (Member # 34930) on :
The best, most successful petitions are made my people with programming skills & the ability to facilitate an organized, direct message.
This means prefilling out everything to the point of where all it takes is someone to type their name.
Posted by sebreg (Member # 44928) on :
I wouldn't get too discouraged, these things take time, luck, the right media or viral spotlight, etc.
I think what counts is trying to do something. Petitions are one thing. But so are sharing stories and experiences. Helping others in the community, by sharing kindness, compassion, encouragement. You guys are doing a lot by just being open about your stories, sharing your compassion, and trying to do your best in difficult circumstances.
Posted by Catgirl (Member # 31149) on :
quote:Originally posted by sebreg: I wouldn't get too discouraged, these things take time, luck, the right media or viral spotlight, etc.
Completely agree!
Razzle, no worries & right on for signing it!
For anyone else, cut and past the link and put it on your facebook and just say: PLEASE SIGN THIS. It is the fastest way to get it done.