posted
Ok you guys have probably dealt with petitions forever so hopefully I'm not annoying by posting this, but just so everyone has a head's up on it:
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Okay gang, you want to change things, sign here. Please get involved. It takes 2 seconds. I know everyone feels like crap, but if you don't get involved nothing will change.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
At the very least acknowledge that you have read this. Feedback would be nice. It often feels like efforts to inform fall on deaf ears.
We won't get anywhere if we are not all in this together.
Done!! That literally took less than three minutes.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Please sign it people. It honestly takes 20 seconds.
If you don't think petitions can beat out big money lobbyists, please read a little about SOPA.
We cannot complain about being walked all over when we skip right by these. One of the Olsen twins has it now.Celebrity after celebrity are coming out sick....one of these petitions goes viral and BOOM, they'll stop going after Dr's like Dr J in Maryland & maybe even designate some funding for it.
It's only so long they can ignore the fastest growing ID in the world right now.....These petitions are crucial.
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Right on!
Come on friends, please participate or nothing will change.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Be sure to copy to your facebook (great way to spread the word and get more signatures)!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lymeboy
Unregistered
posted
good god, 416? Come on we can do better than that!
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I know (pitiful). People should not be so fearful of this. Send out a broadcast email, cut and paste it, and ask friends and family members to sign it.
Come on gang, if you don't do this it won't work. No one is going to do it for us if people don't bother to get involved. Don't hope it gets done, just participate.
Those with HIV would have died off if they didn't stand up and fight back in the 80s. Please join in or nothing will change.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lymeboy
Unregistered
posted
Yes Catgirl. Our lives might suck but we aren't dead. No one's gonna fight for us. This is 100% up to us. We'll keep losing and keep fighting and eventually win. This is how it works.
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posted
Regardless of how many signatures we can get, what counts is that we are trying to make our voices heard. What we want is better science, more research, better dx to confirm or rule out these diseases, and better treatments. I'm confident these things will happen, I just hope they happen sooner rather than later. Lord knows too many have suffered enough without being given options or being disrespected by medical community and I think that's the ultimate travesty, the tunnel vision, lack of compassion, lack of open-mindedness, and sometimes shockingly uninformed biases of some professionals. And this isn't to say that we as patients are perfect and have all the answers and are correct in everything. But we are suffering, and want more info, and hopefully we can get more science and research that can help us with these complicated diseases.
Posts: 30 | From Phoenix, AZ | Registered: Nov 2014
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lymeboy
Unregistered
posted
There must be some celebrity lyme sufferers with large twitter followings that could at least get us a few thousand. It'd be good to have SOME impact here.
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lymeboy
Unregistered
posted
2 weeks left, not even 500 signatures. Oh well try again...
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
I don't understand. In 2012 when the IDSA asked what they could do better their "New Year's Resolution", they got SWAMPED with thousands of angry people on Facebook. They couldn't even keep up with deleting them. I saved almost all of them on my cpu. Those were real people willing to speak out on their Facebook page. That takes courage. These are anonymous petitions & we can't muster 500.
The good thing is that we know the people are out there and willing to speak up.
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
bump
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I signed it. But don't have anyone to publicize it to. The two other Lyme support groups I'm on do not allow me to post petitions.
My Family doesn't want to be bothered with the extra step of email confirmation.
I don't have any friends who aren't members here.
I don't have an account with twitter, facebook or anything else like that.
So, who do I send this to? I'm at a loss...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
The best, most successful petitions are made my people with programming skills & the ability to facilitate an organized, direct message.
This means prefilling out everything to the point of where all it takes is someone to type their name.
posted
I wouldn't get too discouraged, these things take time, luck, the right media or viral spotlight, etc.
I think what counts is trying to do something. Petitions are one thing. But so are sharing stories and experiences. Helping others in the community, by sharing kindness, compassion, encouragement. You guys are doing a lot by just being open about your stories, sharing your compassion, and trying to do your best in difficult circumstances.
Posts: 30 | From Phoenix, AZ | Registered: Nov 2014
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
quote:Originally posted by sebreg: I wouldn't get too discouraged, these things take time, luck, the right media or viral spotlight, etc.
Completely agree!
Razzle, no worries & right on for signing it!
For anyone else, cut and past the link and put it on your facebook and just say: PLEASE SIGN THIS. It is the fastest way to get it done.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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