Nothing has really changed in the past few years. I was diagnosed with Lyme a few years ago based on a process of elimination. I live on cape cod and was diagnosed with chronic fatigue and fibromyalgia based on fatigue and sleeping all day and muscle aches. Then went to id Doctor D and he said let's try treating for Lyme. Five years on antibiotics and I feel no different. Still sleeping ten hours a day. I'm now 27 and I feel like I'm 70. The days of my life seem to go by so fast because I spend most of them sleeping. I am currently using just the Doug coil rife and at home ozone with a ozone generator. Thinking about trying the pe-1 next. Anyone here that has Lyme that didn't respond to antibiotics? What worked for you?
**edited name of LLMD**
[ 02-29-2016, 10:57 AM: Message edited by: Lymetoo ]
Posted by Jordana (Member # 45305) on :
Katrinab, Stephen Buhner's new book is really good. It's not on kindle but you could order it; I did and read it cover to cover in a couple days.
The reason I say this is because he says in the book that he works with, and writes to, the 50 percent of people who did not get better with antibiotics.
You are his audience. For millions of people, seriously, his work has been the way out.
Posted by me (Member # 45475) on :
Have you been checked for coinfections? Is your doc a LLMD?
Posted by bluelyme (Member # 47170) on :
Trying plasma rife ,coinfections dx by art. .doing bvt and herbs ...was thinking about iv? How do you do o3? Have you tx proto/nematodes? ...viral load?metals?
Posted by bcb1200 (Member # 25745) on :
Get away from Dr D. You need to see someone else. There is a doc in Plymouth and another in Watertown that are better. Better docs even still in CT, NY, and PA.
IF it isn't working, fire the doc and find someone who will get you well.
I have a friend of mine who, like you, was disabled for 5 years by this beast. Nothing worked. Abx never gave him a response.
He found an applied kinesiologist in NYC who is reputable for lyme and after 6 months of treatment he is 80% recovered, out putting a resume together, to go back to work full time.
The doc is key. Dr. D is good for simple cases, but it doesn't seem to be working for you.
Posted by katrinab (Member # 30330) on :
I have treated with babesia and I do the ozone with a catheter, rectal insufflation. Doesn't really feel like anything . I do it when I watch tv. I haven't really felt any better with these treatments. I also had a pic line for six months and even that didn't get me better. Yes I've seen several llmds
Posted by Catgirl (Member # 31149) on :
Katrina, I am improving on parasite meds. If you have crushing fatigue you might consider proto (FL1953). It is hard to distinguish babs from proto too. Parasites also keep people from getting better.