posted
Nothing has really changed in the past few years. I was diagnosed with Lyme a few years ago based on a process of elimination. I live on cape cod and was diagnosed with chronic fatigue and fibromyalgia based on fatigue and sleeping all day and muscle aches. Then went to id Doctor D and he said let's try treating for Lyme. Five years on antibiotics and I feel no different. Still sleeping ten hours a day. I'm now 27 and I feel like I'm 70. The days of my life seem to go by so fast because I spend most of them sleeping. I am currently using just the Doug coil rife and at home ozone with a ozone generator. Thinking about trying the pe-1 next. Anyone here that has Lyme that didn't respond to antibiotics? What worked for you?
Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Katrinab, Stephen Buhner's new book is really good. It's not on kindle but you could order it; I did and read it cover to cover in a couple days.
The reason I say this is because he says in the book that he works with, and writes to, the 50 percent of people who did not get better with antibiotics.
You are his audience. For millions of people, seriously, his work has been the way out.
Posts: 2057 | From Florida | Registered: Feb 2015
| IP: Logged |
me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Have you been checked for coinfections? Is your doc a LLMD?
Posts: 1431 | From USA | Registered: Mar 2015
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Trying plasma rife ,coinfections dx by art. .doing bvt and herbs ...was thinking about iv? How do you do o3? Have you tx proto/nematodes? ...viral load?metals?
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Get away from Dr D. You need to see someone else. There is a doc in Plymouth and another in Watertown that are better. Better docs even still in CT, NY, and PA.
IF it isn't working, fire the doc and find someone who will get you well.
I have a friend of mine who, like you, was disabled for 5 years by this beast. Nothing worked. Abx never gave him a response.
He found an applied kinesiologist in NYC who is reputable for lyme and after 6 months of treatment he is 80% recovered, out putting a resume together, to go back to work full time.
The doc is key. Dr. D is good for simple cases, but it doesn't seem to be working for you.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
I have treated with babesia and I do the ozone with a catheter, rectal insufflation. Doesn't really feel like anything . I do it when I watch tv. I haven't really felt any better with these treatments. I also had a pic line for six months and even that didn't get me better. Yes I've seen several llmds
Posts: 723 | From boston,ma | Registered: Jan 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Katrina, I am improving on parasite meds. If you have crushing fatigue you might consider proto (FL1953). It is hard to distinguish babs from proto too. Parasites also keep people from getting better.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic