So, can we just supplement manganese?
Posted by aklnwlf (Member # 5960) on :
Really interesting read!
Posted by Christopher J (Member # 46401) on :
I would absolutely NOT supplement Manganese. That is the worst possible thing you can do because the Lyme will grow out of control. Lyme needs manganese, and infact it needs a lot of manganese.
You might remember that study where the reason Claritin worked is because it reduced Manganese in the system.
From personal experience, once I removed al foods high in manganese from my diet, I started making more and more gains in overall health.
You can weaken it dramatically by cutting off its supply which then makes it more susceptible to antibiotic treatment.
(breaking up the post for easier reading for many here)
[ 12-05-2016, 05:08 AM: Message edited by: Robin123 ]
Posted by AJB (Member # 48059) on :
That is really interesting about the Claritin~anyone take it daily to assist w/ treatment?
Posted by Christopher J (Member # 46401) on :
I did for a while, but you cant take high enough doses of Claritin to achieve that result. What I really took away from that is to cut off manganese in my diet because it was something tangible I could do. Very similar in a way to the iron depletion diet for Malaria.
Posted by Catgirl (Member # 31149) on :
Fascinating Lymetoo if that's the case (MCS and manganese deficiency). I've been limiting manganese for a while.
Good stuff Christoper!
Posted by lookup (Member # 44574) on :
"Dr. K has found a high correlation between patients with chronic Lyme disease and those with Kryptopyrroluria (KPU), or more precisely Hemopyrrollactamuria (HPU).
The condition is alternatively known as the "Mauve Factor.... HPLs bind to zinc, biotin, manganese, vitamin B6, arachidonic acid and other important compounds and lead to a significant depletion of these substances in the body."
It's the chicken and egg thing. Some of us know this has been in our genetics for many generations.
I think it's there, and then it's kicked off by something. For me, it was ramped up by a stressful event several years ago.
Posted by lapis29 (Member # 47626) on :
what does a manganese free diet look like?
am very interested, anyone know about this?
Posted by Lymetoo (Member # 743) on :
Why would you want to limit it?
Posted by lapis29 (Member # 47626) on :
well theoretically if you starve your body of manganese, you also starve BB of it at the same time.
however, multiple places say bb will ultimately be fine and find the manganese it needs one way or another, so maybe it wont work.
at least one doctor is using a Mang. chelating agent called para-aminosalicylic acid to treat Lyme, it also happens to be an antibiotic
“A second tier anti-tuberculosis drug called para-aminosalicylic acid (PAS) can bring down manganese levels in the human body and make life very tough for the Lyme bacteria, but there have been no clinical studies in this area, and PAS is not for everyone. (Borrelia will feel the effects of manganese deficiency long before humans, as humans are no
“My anecdotal experience with PAS is that, at 2/3 the dose recommended for treating tuberculosis, it takes about two weeks to bring down manganese levels enough for the organism to start to suffer and for patients to feel a deeper level of relief. I have had no one report that 10 mg of loratadine was doing anything for them one way or another. That doesn’t mean it won’t or can’t but, again… what is the correct dose, and if the correct dose for doing this is well beyond the normal dose then there will there be untoward reactions to taking so much loratadine? The problem is no one knows yet.
“I have used PAS for a couple of years now, but not just with Lyme. I have used it in patients who exhibit Parkinsonism, because for many there is manganese-toxicity in the parts of the brain that deal with dopamine. I have seen it work many times, so I know it is bringing down manganese levels. Using PAS at a fraction of the dose used to treat TB also makes me feel comfortable using it off-label.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Lymetoo: Someone on another board said that MCS (multiple chemical sensitivity) is associated with manganese deficiency.
I have never heard that and have no idea if it is true, but we do know that Lyme disease depletes our manganese.
Here is proof in case you didn't see that one awhile back: