Hello! I posted here last year looking for info and you were all so helpful.
Long story short. Last spring my son was bit by a tick in upstate NY that tested positive for babesia microti and anaplasmosis. It was on for longer then 24 hours and the site reacted to the bite, red etc. He was tested for the diseases and they turned up negative but I insisted he be treated regardless. So he went through a round of antibiotics.
His neck lymph node has been swollen since last year although it has gone down significantly.
Recently he's acted and stated he is tired or "lost his power". He has also complained of his knees hurting. I'm extremely diligent about tick checking but its not out of the realm of possibility he was bit and I don't know. I did take one off of him but it was dog tick that tested negative. Phew.
I started to incorporate a few drops of grapefruit seed extract into his daily routine.
Is there another test you recommend we do. Perhaps is there something not through his pediatrician?
Also is there anything else you would suggest incorporating into his routine? My friend with chronic lyme said to cut out dairy, gluten and sugar.
Any tips would be appreciated.
Thank You
Posted by Lymetoo (Member # 743) on :
You could try olive leaf extract or some other herbs. Do you think he was tested too early the first time and it was missed?
Posted by Brussels (Member # 13480) on :
You can try a lyme test, but if it comes negative, you won't be sure it is really negative.
The best would be to treat (in my opinion). If he's tired ( a 3 year old should be full of energy, right?), it means there is a problem...
If the tick had babesia, and it stayed 24 hours, it could also have transmitted that (because these blood tests are not very reliable).
Just in case, i would treat him with stuff like Buhner's herbs, Jernigan, anything that deals with the main probable pathogens (Borrelia, babesia, bart). It's easier to treat when there are barely any symptoms than when the kid gets to be really ill.
Knee pain for me is the red alarm (because my daughter had lyme arhtritis since age 2). Her main symptoms were always: knee pain, gut complaints, fussy, bad mood, something was not right.
Posted by Nikolai (Member # 50184) on :
Thank you!
I appreciate the helpful response.
Do you guys know of the most effective tests out there? I received a pm about one, $500. Then I’ve heard of Igenex too
Posted by Robin123 (Member # 9197) on :
I take turmeric capsules every day and it takes down joint, knee and muscle pain for me. It's very simple to take turmeric in some way. It will stain, though, so I take it in capsules.
Re being tired, that could be a lack of magnesium. Also I found that taking flower pollen gave me back my energy when I didn't know what was going on with me!
Posted by Proverbs356 (Member # 51271) on :
If he was only on amoxicillin, that wouldn't have covered the co-infection of Babesia. Does he seem to have any night sweats or air hunger type symptoms?
You should definitely get him tested for co-infections. And in the meantime treat with herbs and try to get an appt with an LLMD who can treat the co-infections that often come with the lyme.
Posted by Nikolai (Member # 50184) on :
He doesn’t have night sweats or air hunger Do you have any suggestions for testing? The llmds are a wait then it’s another 3 weeks for test results once we go Also do you have any herb suggestions? Thank you so much
Posted by map1131 (Member # 2022) on :
I also had Babesia and also didn't have air hunger or night sweats.