This is topic New Definition of Chronic Lyme/ PTLDS in forum Medical Questions at LymeNet Flash.


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Posted by Bartenderbonnie (Member # 49177) on :
 
Dr H just released his research on the definition of chronic Lyme / Post Treatment Lyme Disease Syndrome.

He recommends it now be called Lyme / MSIDS.
( Mulitiple Systemic Infectious Disease Syndrome )

https://m.facebook.com/story.php?story_fbid=1965297150225740&id=558833517538784&_ft_=top_level_post_id.1965297150225740%3Acontent_owner_id_new.558833517538784%3Acall_to_action_type .LEARN_MORE%3Astory_location.4%3Astory_attachment_style.share&__tn__=%2C%3B
 
Posted by duncan (Member # 46242) on :
 
It's not a syndrome. It's a spirochetal disease that has frequent co-infections, none of which is a syndrome.
 
Posted by Bartenderbonnie (Member # 49177) on :
 
https://en.m.wikipedia.org/wiki/Syndrome
 
Posted by duncan (Member # 46242) on :
 
Fine, but I would suggest syndrome is far too often assigned by the medical community as a default mechanism for clusters of symptoms whose cause is unknown.

So why invite a potential problem when we know the causative agents involved in TBD's?

Moreover, I would point out that this approach places us one step farther from clarity. I am reminded of the idea I disagree with of when testing CSF of Lyme patients, looking for the AI instead of ELISA or WB - see what I mean? One step removed from clarity.

I appreciate what he is attempting here. He is trying to capture the idea that this is a package deal. That is usually true these days, as in, what, 75% last time I checked?

The difficulty as I see it is that each disease or parasite or whatever is a discrete agent, and each discrete agent may demand its own peculiar therapy, ie, you won't throw a single therapy protocol at this so called syndrome.
 
Posted by Lymetoo (Member # 743) on :
 
I don't like that name. People need to know it's LYME DISEASE from a tick .. not some 'SYNDROME.'
 
Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by duncan:

Fine, but I would suggest syndrome is far too often assigned by the medical community as a default mechanism for clusters of symptoms whose cause is unknown.

So why invite a potential problem when we know the causative agents involved in TBD's?


-
Exactly
 


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